Clinically significant? Depends on whom you ask.
作者信息
Johnson Liza-Marie, Church Christopher L, Walsh Michael F, Baker Justin N
机构信息
St. Jude Children's Research Hospital, Memphis, TN 38105, USA.
出版信息
Am J Bioeth. 2012;12(10):18-20. doi: 10.1080/15265161.2012.699159.
PMID:22974023
Abstract
摘要
相似文献
1
Clinically significant? Depends on whom you ask.具有临床意义？这取决于你问谁。
Am J Bioeth. 2012;12(10):18-20. doi: 10.1080/15265161.2012.699159.
2
Blurring boundaries.模糊界限。
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3
Disclosure/disruption: considering why not to disclose genetic information after death.披露/破坏：思考死后不披露基因信息的原因。
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Disclosing individual genetic research results to deceased participants' relatives by means of a qualified disclosure policy.通过一项合格的披露政策，向已故参与者的亲属披露个人基因研究结果。
Am J Bioeth. 2012;12(10):10-2. doi: 10.1080/15265161.2012.699145.
5
Risks to relatives in genomic research: a duty to warn?基因组研究中对亲属的风险：有告知义务吗？
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Rethinking clinical risk for DNA sequencing.重新思考DNA测序的临床风险。
Am J Bioeth. 2012;12(10):24-6. doi: 10.1080/15265161.2012.699152.
7
Disclosing results to genomic research participants: differences that matter.向基因组研究参与者披露结果：重要的差异。
Am J Bioeth. 2012;12(10):20-2. doi: 10.1080/15265161.2012.699149.
8
Disclosing decedents' research results to relatives violates the HIPAA Privacy Rule.向亲属披露死者的研究结果违反了《健康保险流通与责任法案》隐私规则。
Am J Bioeth. 2012;12(10):16-7. doi: 10.1080/15265161.2012.699588.
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Beneficence, clinical urgency, and the return of individual research results to relatives.善行、临床紧迫性以及将个体研究结果告知亲属
Am J Bioeth. 2012;12(10):9-10. doi: 10.1080/15265161.2012.699153.
10
The ever-evolving concept of clinical significance and the potential for sins of omission in genetic research.临床意义这一不断演变的概念以及基因研究中遗漏错误的可能性。
Am J Bioeth. 2012;12(10):22-4. doi: 10.1080/15265161.2012.699142.
引用本文的文献
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Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles.向参与者及家属反馈基因研究结果：机构审查委员会的观点与职责
J Law Med Ethics. 2015 Fall;43(3):502-13. doi: 10.1111/jlme.12292.
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Response to open peer commentaries on "Genomic inheritances: disclosing individual research results from whole-exome sequencing to deceased participants' relatives".对关于“基因组遗传：向已故参与者的亲属披露全外显子组测序的个体研究结果”的公开同行评论的回应
Am J Bioeth. 2012;12(12):W9-10. doi: 10.1080/15265161.2012.739836.
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