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“这是一个在让它完全影响生活和不让它影响生活之间取得平衡的问题”——从患者角度出发的偏头痛预防定性研究。

"It's a balance between letting it influence life completely and not letting it influence life at all"--a qualitative study of migraine prevention from patients' perspective.

机构信息

Institute of Neuroscience and Physiology, The Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.

出版信息

Disabil Rehabil. 2013 May;35(10):835-44. doi: 10.3109/09638288.2012.709304. Epub 2012 Sep 20.

Abstract

PURPOSE

The aim of this study was to elucidate migraine prevention from a patient perspective.

METHOD

Twenty-one participants who suffered from migraine were interviewed and the data analysed by means of qualitative content analysis.

RESULTS

The analysis revealed two categories; Avoiding migraine triggers and introducing migraine inhibiting strategies. In both categories, decisions were influenced by an appraisal of the advantages versus disadvantages, attitudes, support and knowledge. An overarching theme: "migraine prevention from the patients' perspective is a balance between letting it influence life completely and not letting it influence life at all" was identified from the interviews.

CONCLUSIONS

As migraine is a chronic disorder that cannot be cured, merely relieved, prevention is of great importance. The present study highlights migraine prevention from the patients' perspective and the important issue of how much prevention is allowed to influence life. Either of the directions involves a risk that life can be controlled by migraine. Acceptance of the disease and allowing migraine prevention to influence life to some degree can be a way of regaining control.

IMPLICATIONS FOR REHABILITATION

• Migraine prevention from the patients' perspective is described as a balance between letting it influence life completely and not letting it influence life at all, which in either direction can lead to a life controlled by migraine. • To take the patients' perspectives of the illness in consideration as well as finding the most suitable treatment, based on an appraisal of individual advantages versus disadvantages is important to meet the need of the patient and to improve migraine prevention. Increased knowledge about migraine prevention is imperative both in health care and for the individual patient. Support during prevention is requested by patients.

摘要

目的

本研究旨在从患者角度阐明偏头痛预防。

方法

对 21 名偏头痛患者进行访谈,采用定性内容分析法对数据进行分析。

结果

分析揭示了两个类别:避免偏头痛诱因和引入偏头痛抑制策略。在这两个类别中,决策受到对优缺点、态度、支持和知识的评估的影响。从访谈中得出一个总的主题:“从患者的角度来看,偏头痛预防是在完全让它影响生活和不让它影响生活之间的平衡”。

结论

由于偏头痛是一种无法治愈的慢性疾病,只能缓解,因此预防非常重要。本研究从患者角度强调了偏头痛预防的重要性,以及允许预防对生活产生多大影响的问题。任何一个方向都涉及到生活被偏头痛控制的风险。接受疾病并在一定程度上让偏头痛预防影响生活,可以是重新获得控制的一种方式。

康复的意义

• 从患者角度来看,偏头痛预防被描述为在完全让它影响生活和不让它影响生活之间的平衡,无论朝哪个方向发展,都可能导致生活被偏头痛控制。• 为了考虑患者对疾病的看法,并根据个人优缺点的评估找到最合适的治疗方法,这对于满足患者的需求和改善偏头痛预防非常重要。增加对偏头痛预防的了解对于医疗保健和患者个体都是必要的。患者需要在预防过程中获得支持。

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