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与此前匿名的配子捐赠者及通过捐赠者配子受孕的成年人合作:英国捐赠者联系网(DonorLink)运行基于DNA的自愿信息交换与联系登记处的近期实践经验。

Working with previously anonymous gamete donors and donor-conceived adults: recent practice experiences of running the DNA-based voluntary information exchange and contact register, UK DonorLink.

作者信息

Crawshaw Marilyn, Gunter Christine, Tidy Christine, Atherton Freda

机构信息

UK DonorLink, Leeds, UK.

出版信息

Hum Fertil (Camb). 2013 Mar;16(1):26-30. doi: 10.3109/14647273.2012.731714. Epub 2013 Feb 5.

DOI:10.3109/14647273.2012.731714
PMID:23009055
Abstract

This article describes recent practice experiences with donor conceived adults, donors, non-donor-conceived adult children of donors using the voluntary DNA-based register, UK DonorLink. It highlights additional complexities faced when using DNA rather than paper records for searching, in particular from the risk of false positives, low chances of success and potential inclusion of biological parents' DNA. Professionals' experiences in supporting those being "linked" suggest challenges as well as rewards. Registration carries the potential to be therapeutic for donor-conceived adults and donors and to enhance their political awareness regardless of links being made. Registrants value both peer and professional support, providing the latter can respond flexibly and be delivered by staff experienced in intermediary work. Given that the majority of those affected by donor conception internationally come from anonymous donation systems, these findings are highly pertinent and argue the need for political and moral debate about such service provision.

摘要

本文介绍了使用基于DNA的自愿登记册“英国捐赠者联系”(UK DonorLink)的捐赠受孕成年人、捐赠者、非捐赠受孕的捐赠者成年子女的近期实践经验。它强调了使用DNA而非纸质记录进行搜索时面临的额外复杂性,特别是假阳性风险、成功几率低以及可能包含生物父母的DNA。专业人员在支持那些进行“匹配”的人的过程中的经验表明既有挑战也有收获。登记有可能对捐赠受孕成年人和捐赠者起到治疗作用,并提高他们的政治意识,无论是否建立了联系。登记人重视同伴和专业支持,前提是后者能够灵活回应,并由有中介工作经验的工作人员提供。鉴于国际上受捐赠受孕影响的大多数人来自匿名捐赠系统,这些发现极具相关性,并表明有必要就此类服务提供进行政治和道德辩论。

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