Department of Cardiothoracic Surgery, Skåne University Hospital and Lund University, Lund, Sweden.
Eur J Cardiovasc Nurs. 2013 Aug;12(4):400-6. doi: 10.1177/1474515112466155. Epub 2012 Nov 26.
Heart or lung recipients are taught about a new lifestyle, risk factors, medication, food restrictions and exercise so they can take an active role and responsibility for disease management after transplantation. However, little is known about patients' experiences of information and support in these situations.
The aim of the study was to illuminate how patients, six months after a heart or lung transplantation, experienced the information and support they received in connection with the transplantation.
Sixteen patients were included in the study, and interviews were analysed using a qualitative content analysis method.
The findings are presented in three themes: Alternating between gratitude and satisfaction and resignation, Striving to follow treatment strategies and Returning to a relatively normal life. The patients expressed gratitude when their health improved markedly but resignation when complications or side effects occurred due to the lack of information and support they received.
Healthcare professionals can make specific improvements in the information they provide to patients to increase their preparedness. Information and support should be provided regularly so as to avoid non-adherence to essential guidelines. To return to a normal life, patients need support from healthcare organizations, families, employers and society in general. These findings should be taken into account in the clinical management of transplant patients, particularly those with dependent children or failing social networks.
心脏或肺移植受者会接受有关新的生活方式、风险因素、药物、饮食限制和运动的教育，以便他们能够在移植后积极主动地承担疾病管理的责任。然而，对于患者在这些情况下对信息和支持的体验，我们知之甚少。
本研究旨在阐明心脏或肺移植六个月后的患者在移植过程中对所获得的信息和支持的体验。
研究纳入了 16 名患者，采用定性内容分析法对访谈进行了分析。
研究结果呈现为三个主题：在感激和满意与无奈之间交替，努力遵循治疗策略，以及回归相对正常的生活。当患者的健康状况显著改善时，他们表示感激，但当由于缺乏信息和支持而出现并发症或副作用时，他们又表示无奈。
医护人员可以在为患者提供的信息中做出具体改进，以提高患者的准备程度。应定期提供信息和支持，以避免不遵守基本指南的情况发生。为了回归正常生活，患者需要得到医疗机构、家庭、雇主和整个社会的支持。这些发现应在移植患者的临床管理中加以考虑，特别是那些有未成年子女或社会网络失败的患者。
