Global and Women's Health, Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.
PLoS One. 2020 Nov 11;15(11):e0241570. doi: 10.1371/journal.pone.0241570. eCollection 2020.
To review evidence about the experience of being the recipient of a donated heart, lungs, or heart and lungs.
A systematic review (registered with PROSPERO: CRD42017067218), in accordance with PRISMA guidelines.
Seven databases and Google Scholar were searched in May 2017 and July 2019 for papers reporting English-language research that had used qualitative methods to investigate experiences of adult recipients.
Quality was assessed and results were analysed thematically.
24 papers (reporting 20 studies) were eligible and included. Their results were organised into three chronological periods: pre-transplant (encompassing the themes of 'dynamic psychosocial impact', 'resources and support'), transplant ('The Call', 'intensive care unit'), and post-transplant ('dynamic psychosocial impact', 'management', 'rejection'). Sub-themes were also identified. It was evident that contemplating and accepting listing for transplantation entailed or amplified realisation of the precipitating illness's existential threat. The period surrounding transplantation surgery was marked by profound, often surreal, experiences. Thereafter, although life usually improved, it incorporated unforeseen challenges. The transplantation clinic remained important to the recipient. The meaning of the clinic and its staff could be both reassuring (providing care and support) and threatening (representing onerous medical requirements and potential organ rejection).
This review has implications for the psychosocial care of transplant recipients and indicates the need for further research to gain insight into the experience of receiving a donated heart and/or lung.
Medical consequences of heart and lung transplantation are well documented; this is the first systematic review of research using qualitative methods to investigate the experience of heart, lung, and heart-and-lung transplantation. The psychosocial impact of transplantation was found to be dynamic and complex, with notable features evident before, during, and after transplantation. Clinic staff remained significant to recipients. It is clear that recipients need continuing psychosocial as well as medical support.
回顾接受捐赠的心脏、肺或心肺的体验的证据。
系统评价(在 PROSPERO 中注册:CRD42017067218),符合 PRISMA 指南。
2017 年 5 月和 2019 年 7 月,在 7 个数据库和 Google Scholar 上搜索了以英文发表的使用定性方法调查成人接受者经验的研究论文。
评估质量并进行主题分析。
24 篇论文(报告了 20 项研究)符合条件并被纳入。他们的结果被组织成三个时间顺序的时期:移植前(包括“动态心理社会影响”、“资源和支持”的主题)、移植时(“召唤”、“重症监护病房”)和移植后(“动态心理社会影响”、“管理”、“排斥”)。还确定了子主题。显然,考虑并接受移植名单意味着或放大了导致疾病的生存威胁的实现。围绕移植手术的时期以深刻的、常常是超现实的经历为标志。此后,尽管生活通常有所改善,但也包含了意想不到的挑战。移植诊所对接受者仍然很重要。诊所及其工作人员的意义既可以是安慰的(提供关怀和支持),也可以是威胁的(代表繁重的医疗要求和潜在的器官排斥)。
这一综述对移植受者的心理社会护理具有启示意义,并表明需要进一步研究,以深入了解接受捐赠的心脏和/或肺的体验。
心肺移植的医学后果已有充分记录;这是首次使用定性方法对心脏、肺和心肺移植的体验进行系统评价。研究发现,移植的心理社会影响是动态和复杂的,在移植前、移植中和移植后都有显著的特征。诊所工作人员对接受者仍然很重要。很明显,接受者需要持续的心理社会和医疗支持。