Pullen Suzanne, Golden Mindi Ann, Cacciatore Joanne
Hugh Downs School of Human Communication, Arizona State University, Tempe, Arizona 85287, USA.
J Soc Work End Life Palliat Care. 2012;8(4):339-55. doi: 10.1080/15524256.2012.732022.
This qualitative study analyzed stillbirth notification messages recalled by parents who strongly agreed (n = 47) and strongly disagreed (n = 43) that the way news about the death of their infant was delivered negatively impacted their grieving process. Three message elements formed a core stillbirth notification experience (delay of news delivery; expression of sympathy; communication of death), and three additional message elements occurred in both data sets (communication regarding options; expression of uncertainty; exit of health care provider); however, the messages differed in form and frequency between the two groups. Three message elements reflected opposing experiences for the two groups (support of parent emotion; continuity of care; and information provision). Recommendations for stillbirth notification that emphasize acknowledging parent perceptions, clear language and information, empathetic communication, and continuity of care are given.
这项定性研究分析了那些强烈同意（n = 47）和强烈不同意（n = 43）其婴儿死亡消息的传达方式对其悲伤过程产生负面影响的父母所回忆的死产通知信息。三个信息要素构成了核心死产通知体验（消息传递延迟；同情表达；死亡告知），并且在两个数据集中都出现了另外三个信息要素（关于选择的沟通；不确定性表达；医护人员离开）；然而，两组之间的信息在形式和频率上有所不同。三个信息要素反映了两组相反的经历（对父母情感的支持；护理的连续性；以及信息提供）。文中给出了关于死产通知的建议，强调要承认父母的看法、使用清晰的语言和信息、进行同理心沟通以及保持护理的连续性。
