Department of Dermatology, University of California Davis, Sacramento, California, United States of America.
PLoS One. 2012;7(12):e52935. doi: 10.1371/journal.pone.0052935. Epub 2012 Dec 28.
To ascertain impairment in quality of life and work productivity among patients with psoriasis and psoriatic arthritis.
From 2003 through 2011, the National Psoriasis Foundation collected survey data from patients with psoriasis and psoriatic arthritis via email and telephone correspondences.
Survey data were collected from psoriasis and psoriatic arthritis patients in the general community in the U.S.
Quality of life focusing on emotional impact (anger, frustration, helplessness, etc.) and physical impact (pain, pruritus, physical irritation, etc.); employment status.
The surveys were performed through random sampling of participants from a database of over 75,000 patients.
From 2003 to 2011, 5,604 patients completed the surveys. Psoriasis and psoriatic arthritis affected overall emotional wellbeing in 88% of patients, and they interfered with enjoyment of life in 82%. Most patients reported experiencing anger (89%), frustration (89%), helplessness (87%), embarrassment (87%), and self-consciousness (89%). Many patients also actively concealed physical manifestations of their diseases (83%), and experienced pain (83%) and pruritus (93%) regularly. Of note, 12% of patients were unemployed, and 11% worked part-time. Among unemployed patients, 92% cited psoriasis and/or psoriatic arthritis as the sole reasons for not working. Among working patients, 49% missed work days regularly due to psoriasis. Compared to patients with mild psoriasis, patients with severe psoriasis have 1.8 times greater odds to be unemployed after adjusting for age and gender (Adjusted OR = 1.7, 95% CI 1.4-2.3).
Patients with psoriasis and psoriatic arthritis continue to experience significant impairment of quality of life and work productivity.
确定银屑病和银屑病关节炎患者生活质量受损和工作生产力下降的情况。
2003 年至 2011 年期间，国家银屑病基金会通过电子邮件和电话通讯方式从银屑病和银屑病关节炎患者那里收集调查数据。
调查数据来自美国普通社区的银屑病和银屑病关节炎患者。
生活质量主要关注情感影响（愤怒、沮丧、无助等）和身体影响（疼痛、瘙痒、身体刺激等）；就业状况。
调查是通过从一个拥有超过 75000 名患者的数据库中随机抽取参与者进行的。
2003 年至 2011 年，共有 5604 名患者完成了调查。银屑病和银屑病关节炎影响了 88%的患者的整体情感健康，使他们无法享受生活，比例为 82%。大多数患者报告经历了愤怒（89%）、沮丧（89%）、无助（87%）、尴尬（87%）和自我意识（89%）。许多患者还积极隐瞒自己疾病的身体表现（83%），经常感到疼痛（83%）和瘙痒（93%）。值得注意的是，12%的患者失业，11%的患者兼职。在失业患者中，92%的人将银屑病和/或银屑病关节炎作为不工作的唯一原因。在工作患者中，由于银屑病，有 49%的人经常缺勤。在调整年龄和性别后，与轻度银屑病患者相比，重度银屑病患者失业的可能性增加 1.8 倍（调整后的 OR=1.7，95%CI 1.4-2.3）。
银屑病和银屑病关节炎患者的生活质量和工作生产力持续受损。
