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本文引用的文献

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How assistive technology use by individuals with disabilities impacts their caregivers: a systematic review of the research evidence.残疾人使用辅助技术如何影响其照顾者:对研究证据的系统综述。
Am J Phys Med Rehabil. 2012 Nov;91(11):984-98. doi: 10.1097/PHM.0b013e318269eceb.
2
Effects of assistive technology on functional decline in people aging with a disability.辅助技术对残疾老年人功能下降的影响。
Assist Technol. 2009 Winter;21(4):208-17. doi: 10.1080/10400430903246068.
3
A conceptual framework of outcomes for caregivers of assistive technology users.辅助技术使用者照料者的结果概念框架。
Am J Phys Med Rehabil. 2009 Aug;88(8):645-55; quiz 656-8, 691. doi: 10.1097/PHM.0b013e3181ae0e70.
4
The emotional needs of care recipients and the psychological well-being of informal caregivers: implications for home care clinicians.受照顾者的情感需求与非正式照顾者的心理健康:对居家护理临床医生的启示
Home Healthc Nurse. 2008 Jan;26(1):50-7. doi: 10.1097/01.NHH.0000305557.29918.e5.
5
Measurement of assistive device use: implications for estimates of device use and disability in late life.辅助设备使用情况的测量:对晚年设备使用及残疾估计的影响
Gerontologist. 2005 Jun;45(3):347-58. doi: 10.1093/geront/45.3.347.
6
Clinical practice guidelines to improve shared decision-making about assistive device use in home care: a pilot intervention study.改善家庭护理中辅助设备使用共同决策的临床实践指南:一项试点干预研究。
Patient Educ Couns. 2004 Nov;55(2):252-64. doi: 10.1016/j.pec.2003.10.002.
7
Measuring social participation: reliability of the LIFE-H in older adults with disabilities.测量社会参与度:适用于残疾老年人的LIFE-H量表的信度
Disabil Rehabil. 2004 Mar 18;26(6):346-52. doi: 10.1080/09638280410001658649.
8
Factors influencing the use of mobility technology in community-based long-term care.影响社区长期护理中移动技术使用的因素
J Aging Health. 2004;16(2):267-307. doi: 10.1177/0898264303262623.
9
Incorporating assistive devices into community-based long-term care: an analysis of the potential for substitution and supplementation.将辅助设备纳入社区长期护理:对替代和补充潜力的分析。
J Aging Health. 2000 Aug;12(3):426-50. doi: 10.1177/089826430001200307.
10
Feasibility, validity and test-retest reliability of scaling methods for health states: the visual analogue scale and the time trade-off.健康状态评分方法的可行性、有效性及重测信度:视觉模拟评分法与时间权衡法
Qual Life Res. 1999 Jun;8(4):303-10. doi: 10.1023/a:1008952423122.

辅助技术干预对残疾老年人及其非正式照护者的影响:一项探索性随机对照试验。

Effects of an assistive technology intervention on older adults with disabilities and their informal caregivers: an exploratory randomized controlled trial.

机构信息

Centre de recherche de l'institut universitaire de gériatrie de Montréal, Montreal, PQ, Canada.

出版信息

Am J Phys Med Rehabil. 2013 Apr;92(4):297-306. doi: 10.1097/PHM.0b013e31827d65bf.

DOI:10.1097/PHM.0b013e31827d65bf
PMID:23291602
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5484629/
Abstract

OBJECTIVE

The aim of this study was to demonstrate experimentally that an assistive technology (AT) intervention improves older AT users' activity performance and satisfaction with activity performance and decreases their caregivers' sense of burden.

DESIGN

This study was a delayed intervention, randomized control trial. Baseline data were collected on 44 community-dwelling AT user-caregiver dyads in Vancouver, British Columbia, and Montreal, Quebec. The primary outcome measures for AT users were the satisfaction and accomplishment scales from the Assessment of Life Habits. The primary outcome measure for caregivers was the Caregiver Assistive Technology Outcome Measure, which assessed burden associated with dyad-identified problematic activities.

RESULTS

After the intervention, assistance users in the immediate intervention group reported significantly increased satisfaction with activity performance (P < 0.001) and improved accomplishment scores (P = 0.014). Informal caregivers in the immediate intervention group experienced significantly decreased burden with the dyad-identified problematic activity (P = 0.013). Participants in the delayed intervention group experienced similar benefits after the intervention. Improvements for both groups were mostly maintained 4 mos after the conclusion of the intervention.

CONCLUSIONS

This is the first experimental study to demonstrate that the provision of AT decreases caregiver burden. If confirmed and extended by subsequent research, the findings have significant policy and practice implications and may enable health care providers to advocate for improved access to AT provision and the related follow-up services.

摘要

目的

本研究旨在通过实验证明,辅助技术(AT)干预可提高老年 AT 用户的活动表现和对活动表现的满意度,并降低其照顾者的负担感。

设计

本研究为延迟干预、随机对照试验。基线数据采集于不列颠哥伦比亚省温哥华和魁北克省蒙特利尔的 44 对居住在社区的 AT 用户-照顾者二人组。AT 用户的主要结局测量指标为生活习惯评估中的满意度和完成度量表。照顾者的主要结局测量指标为照顾者辅助技术结局测量,其评估与二人组确定的有问题的活动相关的负担。

结果

干预后,即时干预组的辅助使用者报告称,其对活动表现的满意度显著提高(P<0.001),完成度评分也有所改善(P=0.014)。即时干预组的非正式照顾者在与二人组确定的有问题的活动相关的负担显著降低(P=0.013)。延迟干预组的参与者在干预后也经历了类似的益处。两组的改善在干预结束后 4 个月大多得以维持。

结论

这是首个证明提供 AT 可降低照顾者负担的实验研究。如果后续研究得到证实和扩展,这些发现将具有重要的政策和实践意义,并可能使医疗保健提供者能够倡导更好地获得 AT 供应以及相关的后续服务。