巴西脑瘫儿童的日常活动功能能力及照顾者的协助情况

Functional capacity and assistance from the caregiver during daily activities in Brazilian children with cerebral palsy.

作者信息

Malheiros Silvia Rp, Monteiro Carlos B de Mello, da Silva Talita Dias, Torriani-Pasin Camila, de Andrade Michele, Valenti Vitor E, Raimundo Rodrigo Daminello, Roosch Anelise, Rodrigues Luciano, Manhabusque Katia Valeria, Camargo Regina Céliac Trindade, Drezzet Jefferson, Quadrado Virginia Helena, de Abreu Luiz Carlos

机构信息

Laboratório de Escrita Científica, Faculdade de Medicina do ABC, Av, Príncipe de Gales, 821, 09060-650, Santo André, SP, Brazil.

出版信息

Int Arch Med. 2013 Jan 10;6(1):1. doi: 10.1186/1755-7682-6-1.

DOI:10.1186/1755-7682-6-1

PMID:23302576

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3599980/

Abstract

BACKGROUND

Cerebral Palsy (CP) presents changes in posture and movement as a core characteristic, which requires multiprofessional clinical treatments during children's habilitation or rehabilitation. Besides clinical treatment, it is fundamental that professionals use evaluation systems to quantify the difficulties presented to the individual and their families in their daily lives. We aimed to investigate the functional capacity of individuals with CP and the amount of assistance required by the caregiver in day-to-day activities.

METHODS

Twenty patients with CP, six-year-old on average, were evaluated. The Pediatric Evaluation Inventory of Incapacities was used (PEDI - Pediatric Evaluation Disability Inventory), a system adapted for Brazil that evaluates child's dysfunction in three 3 dimensions: self-care, mobility and social function. To compare the three areas, repeated measures analysis of variance (ANOVA) were used.

RESULTS

We found the following results regarding the functional capacity of children: self-care, 27.4%, ±17.5; mobility, 25.8%, ±33.3 and social function, 36.3%, ±27.7. The results of the demand of aid from the caregiver according to each dimension were: self-care, 9.7%, ±19.9; mobility, 14.1%, ± 20.9 and social function, 19.8%, ±26.1.

CONCLUSION

We indicated that there was no difference between the performance of the subjects in areas of self-care, mobility and social function considering the functional skills and assistance required by the caregiver.

摘要

背景

脑性瘫痪（CP）以姿势和运动变化为核心特征，在儿童 habilitation 或康复过程中需要多专业临床治疗。除临床治疗外，专业人员使用评估系统来量化个体及其家庭在日常生活中所面临的困难至关重要。我们旨在调查 CP 患者的功能能力以及照顾者在日常活动中所需的协助量。

方法

对平均年龄为 6 岁的 20 名 CP 患者进行评估。使用了儿童功能残疾评估量表（PEDI - Pediatric Evaluation Disability Inventory），这是一个适用于巴西的系统，可在三个维度上评估儿童功能障碍：自我照顾、移动能力和社会功能。为比较这三个领域，使用了重复测量方差分析（ANOVA）。

结果

我们发现儿童功能能力方面的以下结果：自我照顾能力为 27.4%，±17.5；移动能力为 25.8%，±33.3；社会功能为 36.3%，±27.7。根据各维度得出的照顾者援助需求结果为：自我照顾方面为 9.7%，±19.9；移动能力方面为 14.1%，±20.9；社会功能方面为 19.8%，±26.1。