Patel Rupa A, Klasnja Predrag, Hartzler Andrea, Unruh Kenton T, Pratt Wanda
University of Washington, Seattle, WA, USA.
AMIA Annu Symp Proc. 2012;2012:1340-9. Epub 2012 Nov 3.
People with cancer experience many unanticipated symptoms and struggle to communicate them to clinicians. Although researchers have developed patient-reported outcome (PRO) tools to address this problem, such tools capture retrospective data intended for clinicians to review. In contrast, real-time tracking tools with visible results for patients could improve health outcomes and communication with clinicians, while also enhancing patients' symptom management. To understand potential benefits of such tools, we studied the tracking behaviors of 25 women with breast cancer. We provided 10 of these participants with a real-time tracking tool that served as a "technology probe" to uncover behaviors and benefits from voluntary use. Our findings showed that while patients' tracking behaviors without a tool were fragmented and sporadic, these behaviors with a tool were more consistent. Participants also used tracked data to see patterns among symptoms, feel psychosocial comfort, and improve symptom communication with clinicians. We conclude with design implications for future real-time tracking tools.
癌症患者会经历许多意想不到的症状,并且难以将这些症状告知临床医生。尽管研究人员已经开发了患者报告结局(PRO)工具来解决这一问题,但此类工具收集的是供临床医生审查的回顾性数据。相比之下,能为患者提供可见结果的实时跟踪工具可以改善健康状况并加强与临床医生的沟通,同时还能增强患者的症状管理能力。为了解此类工具的潜在益处,我们研究了25名乳腺癌女性的跟踪行为。我们为其中10名参与者提供了一种实时跟踪工具,作为“技术探针”,以发现自愿使用该工具的行为及益处。我们的研究结果表明,在没有工具的情况下,患者的跟踪行为零散且不规律,而使用工具后的行为则更加一致。参与者还利用跟踪数据来观察症状模式、获得心理社会安慰,并改善与临床医生的症状沟通。我们最后得出了对未来实时跟踪工具的设计启示。