Fearnley Rachel
Community Pract. 2012 Dec;85(12):22-5.
The last two decades have seen an academic and practice based shift in the acknowledgment that children require support following the death of a significant person. However, the needs of children who are living amidst parental life threatening illness are not, as yet, so clearly recognised or acknowledged. These children are often forgotten and their needs are frequently peripheral, if not absent, within the clinical setting. The current study adopted qualitative methodology to explore children's experiences when living with a parent who is dying. A total of 36 people were interviewed, including children, their parents and professionals. The findings highlighted the importance of age appropriate information sharing with the children and the significant role professionals have in facilitating conversations either directly or through supporting the parents to hold these 'difficult' discussions. This paper offers an overview of the vital role community practitioners have in supporting the children of patients. It argues that they often have a more in-depth knowledge of the family and its functioning and that consequently they can add a different dimension to the care provided.
在过去二十年里,在认识到儿童在重要人物去世后需要支持这一点上,出现了基于学术和实践的转变。然而,生活在父母身患危及生命疾病环境中的儿童的需求,尚未得到如此明确的认识或承认。这些儿童常常被遗忘,在临床环境中,他们的需求即便不是完全被忽视,也常常处于边缘地位。本研究采用定性研究方法,以探索儿童在与垂死父母共同生活时的经历。总共采访了36人,包括儿童、他们的父母和专业人士。研究结果凸显了与儿童进行适合其年龄的信息共享的重要性,以及专业人士在直接促进对话或通过支持父母进行这些“艰难”讨论方面所起的重要作用。本文概述了社区从业者在支持患者子女方面所起的关键作用。文章认为,他们往往对家庭及其功能有更深入的了解,因此能够为所提供的护理增添不同的维度。