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脑瘫

Cerebral palsy.

作者信息

Kent Ruth M

机构信息

Rehabilitation Services, Pinderfields General Hospital, Wakefield, UK.

出版信息

Handb Clin Neurol. 2013;110:443-59. doi: 10.1016/B978-0-444-52901-5.00038-1.

DOI:10.1016/B978-0-444-52901-5.00038-1
PMID:23312663
Abstract

Cerebral palsy affects movement and posture causing activity limitation; it is a lifelong condition, with foreseeable complications. There are evidence-based interventions that will prevent participation restriction. Childhood interventions are generally delivered within multidisciplinary rehabilitation programs. Sadly young adults are often not transferred to an appropriate multidisciplinary adult neurodisability service. An unexplained neurological deterioration should warrant further investigation. Pain is an important underreported symptom and musculoskeletal complaints are prevalent. Disabled adults have less participation socially, in employment, marriage, and independent living related to health problems, discrimination, or lack of access to information, support, and equipment. Evidence-based interventions include a variety of modalities at all International Classification of Functioning, Disability, and Health levels to include support and adaptations. Rehabilitation interventions that have been shown to be effective include surgery in childhood, ankle-foot orthoses, strength training, and electrical stimulation. Management of spasticity is beneficial and has an evidence base. Orthotics and casting are also used. Systematic reviews of upper limb therapies also show the benefit of physical therapy exercise, strengthening, fitness training, and constraint therapy. Occupational therapy has a weaker evidence base than in other disabling conditions but many modalities are transferable. Speech therapy is effective although no specific intervention is better. Psychological wellbeing interventions, including improving self-efficacy, health knowledge, and coping skills, are beneficial. Management of continence, nutrition, and fatigue promote wellbeing.

摘要

脑瘫会影响运动和姿势,导致活动受限;这是一种终身疾病,会出现可预见的并发症。有基于证据的干预措施可预防参与受限。儿童期干预通常在多学科康复项目中实施。遗憾的是,年轻人往往没有被转介到合适的多学科成人神经残疾服务机构。不明原因的神经功能恶化应进行进一步调查。疼痛是一种重要但报告不足的症状,肌肉骨骼问题很普遍。成年残疾人在社交、就业、婚姻以及与健康问题、歧视或缺乏信息、支持和设备相关的独立生活方面的参与度较低。基于证据的干预措施包括在《国际功能、残疾和健康分类》所有层面的各种方式,包括支持和调整。已证明有效的康复干预措施包括儿童期手术、踝足矫形器、力量训练和电刺激。痉挛的管理是有益的且有证据支持。也使用矫形器和石膏。上肢治疗的系统评价也显示了物理治疗运动、强化训练、体能训练和强制性治疗的益处。职业治疗的证据基础比其他致残情况弱,但许多方式是可转换的。言语治疗是有效的,尽管没有哪种特定干预措施更优。包括提高自我效能感、健康知识和应对技能在内的心理健康干预措施是有益的。大小便失禁、营养和疲劳的管理可促进健康。

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