Research Group Elderly Care Innovations, Centre of Expertise in Health Care and Social Work, Windesheim University of Applied Sciences, The Netherlands.
Ageing Res Rev. 2013 Mar;12(2):535-51. doi: 10.1016/j.arr.2013.01.002. Epub 2013 Jan 11.
Involving people with dementia in research is not self-evident. Inclusion of people with dementia in the development process of user-friendly, supportive IT applications may be especially useful to improve the quality of these applications and may be beneficial to the person with dementia. The aim of this study was to gain insight into the involvement of people with dementia in developing supportive IT applications. The focus of involvement was on phase, methods, role and impact on the quality of the IT application and on the person with dementia.
A systematic search was undertaken using Cochrane Library, PubMED, PsycInfo, EMBASE, and CINAHL. Publications were selected using the following inclusion criteria: publications had to address a development process of an IT application involving people with dementia. The BMJ checklist was used to assess the quality of the included publications.
Twenty-six publications relating to 15 IT programs met the inclusion criteria. People with dementia were mainly involved in the exploratory and technical development phases. The methods most frequently used to involve the participants were interviews, observations and usability try-outs. In most studies, participants were objects of study and informants. People with dementia provided useful feedback and gave valuable recommendations for researchers and designers regarding the development of user-friendly, supportive, IT applications. Involvement in all phases may have empowering effects on people with dementia.
To develop valuable, user-friendly, supportive IT applications that increase the quality of life of people with dementia involvement in all phases of the development process is of great importance.
让痴呆症患者参与研究并非不言而喻。让痴呆症患者参与到用户友好型、支持性 IT 应用程序的开发过程中可能特别有用，可以提高这些应用程序的质量，并且可能对痴呆症患者有益。本研究的目的是深入了解痴呆症患者在开发支持性 IT 应用程序中的参与情况。参与的重点是在各个阶段、方法、角色以及对 IT 应用程序和痴呆症患者的质量的影响。
使用 Cochrane Library、PubMED、PsycInfo、EMBASE 和 CINAHL 进行了系统搜索。使用以下纳入标准选择出版物：出版物必须涉及涉及痴呆症患者的 IT 应用程序的开发过程。使用 BMJ 清单评估纳入出版物的质量。
有 26 篇与 15 个 IT 程序相关的出版物符合纳入标准。痴呆症患者主要参与探索性和技术开发阶段。最常用于参与参与者的方法是访谈、观察和可用性测试。在大多数研究中，参与者是研究对象和信息提供者。痴呆症患者为研究人员和设计师提供了有关开发用户友好型、支持性 IT 应用程序的有用反馈和宝贵建议。在所有阶段的参与都可能对痴呆症患者产生赋权效应。
为了开发有价值的、用户友好的、支持性的 IT 应用程序，提高痴呆症患者的生活质量，在开发过程的所有阶段让他们参与都非常重要。
