Jones Isla, Marshall Julie, Lawthom Rebecca, Read Jennifer
Department of Health Professions, Faculty of Health Psychology and Social Care, Manchester Metropolitan University, Hathersage Road, Manchester M13 OJA, UK.
Int J Speech Lang Pathol. 2013 Feb;15(1):75-8. doi: 10.3109/17549507.2012.743175.
The World Report on Disability recommends more involvement of people with disabilities in research. However, the lead article by Wylie, McAllister, Davidson, and Marshall (2013) has not addressed issues relating specifically to the involvement of people with communication disabilities in research. This deserves careful consideration. Involving people with communication difficulties in research forefronts discussion and collaboration, and requires researchers to focus on the priorities and needs of people with communication disabilities in their locality. Taking a participatory approach to research can develop a rich, context-specific understanding of communication disabilities. This paper uses the first author's experience preparing for a participatory research project in Uganda, to outline, particularly with reference to the Majority World, the benefits and challenges of engaging people with communication disabilities in research.
《世界残疾报告》建议让残疾人更多地参与研究。然而，怀利、麦卡利斯特、戴维森和马歇尔（2013年）的头条文章并未涉及与沟通障碍者参与研究相关的具体问题。这值得认真考虑。让有沟通困难的人参与研究突出了讨论与合作，并要求研究人员关注当地沟通障碍者的优先事项和需求。采用参与式研究方法可以形成对沟通障碍丰富的、因地制宜的理解。本文利用第一作者为乌干达一个参与式研究项目做准备的经验，特别针对世界上的大多数地区，概述让沟通障碍者参与研究的益处和挑战。
