University of North Carolina, Chapel Hill, NC, USA.
Intellect Dev Disabil. 2013 Feb;51(1):62-73. doi: 10.1352/1934-9556-51.01.062.
Women with intellectual disability do not receive cervical and breast cancer screening at the same number as women without disabilities. Numerous barriers to receipt of screening have been reported by individuals with intellectual disability, paid caregivers, nurses, and other medical professionals. This study utilized semi-structured qualitative interviews to assess barriers to care from the perspective of female familial caregivers (n = 32). Caregivers reported a number of barriers to care including not knowing or not believing the exam was needed for their family member and discomfort during exams. Caregivers also described enablers to screening. The most common response to what enabled the woman with an intellectual disability to receive the exam was preparation prior to the exam. A significant portion of the sample of family caregivers lacked knowledge about the need for cervical and breast cancer screening by women with intellectual disability. Policy recommendations are discussed.
智障女性接受宫颈癌和乳腺癌筛查的比例并不像非残疾女性那样高。智障人士、付费护理人员、护士和其他医疗专业人员报告了许多接受筛查的障碍。本研究采用半结构化定性访谈，从女性家庭护理人员的角度评估护理障碍（n = 32）。护理人员报告了许多护理障碍，包括不知道或不相信该检查对其家庭成员的必要性，以及检查过程中的不适。护理人员还描述了促进筛查的因素。最常见的回答是，在检查前做准备使智障女性能够接受检查。相当一部分家庭护理人员样本缺乏关于智障女性需要进行宫颈癌和乳腺癌筛查的知识。讨论了政策建议。
