Disability & Community Inclusion, School of Medicine, Flinders University, South Australia, Australia.
Epilepsy Behav. 2013 Apr;27(1):251-6. doi: 10.1016/j.yebeh.2013.01.016. Epub 2013 Feb 28.
The aim of the current study was to examine self-report data on perceptions of unfair treatment due to epilepsy.
We analyzed data from the 2010 Australian Epilepsy Longitudinal Survey, distributed to 621 registrants on the Australian Epilepsy Research Register. A total of 343 responses were received (55% response rate), providing insight into experiences of life with epilepsy in Australia. Responses relating to perceptions of unfair treatment in areas of employment, education and community participation as a result of epilepsy are reported in this article.
Forty-eight percent of respondents reported perceptions of unfair treatment as a result of their epilepsy, with most providing details of their experiences. Discrimination in the workplace remains of key concern, with 47% citing examples of unfair treatment in this setting.
In spite of Australian anti-discrimination laws, findings indicate that full-time employment rates for people with epilepsy are lower than previously reported, with further mechanisms for support required to improve education and reduce experiences of stigma.
本研究旨在考察因癫痫而产生的不公平待遇的自我报告数据。
我们分析了澳大利亚癫痫纵向研究 2010 年的数据，该研究向澳大利亚癫痫研究登记册上的 621 名登记者分发了问卷。共收到 343 份回复（回应率为 55%），为了解澳大利亚癫痫患者的生活经历提供了一定的洞见。本文报告了与因癫痫在就业、教育和社区参与方面的不公平待遇相关的感知的结果。
48%的受访者报告因癫痫而感到受到不公平待遇，大多数人详细说明了他们的经历。工作场所的歧视仍然是一个主要问题，47%的人在这种情况下举出了不公平待遇的例子。
尽管有澳大利亚的反歧视法，但调查结果表明，癫痫患者的全职就业率低于此前的报告，需要进一步的支持机制来改善教育和减少耻辱感的经历。
