卵巢癌幸存者的自我维权经历：一项焦点小组研究。
Ovarian cancer survivors' experiences of self-advocacy: a focus group study.
作者信息
Hagan Teresa L, Donovan Heidi S
机构信息
Department of Acute and Tertiary Care in the School of Nursing, University of Pittsburgh, Pennsylvania, USA.
出版信息
Oncol Nurs Forum. 2013 Mar;40(2):140-7. doi: 10.1188/13.ONF.A12-A19.
PURPOSE/OBJECTIVES: To explore ovarian cancer survivors' experiences of self-advocacy in symptom management.
RESEARCH APPROACH
Descriptive, qualitative.
SETTING
A public café in an urban setting.
PARTICIPANTS
13 ovarian cancer survivors aged 26-69 years with a mean age of 51.31.
METHODOLOGIC APPROACH
Five focus groups were formed. Focus group discussions were audio recorded and transcribed verbatim. The content was analyzed using the constant comparison method with axial coding. In-depth interviews with 5 of the 13 participants occurred via telephone one to five months after each focus group meeting to clarify and expand on identified themes. Preliminary findings were shared with all participants for validation.
FINDINGS
Two major themes emerged from the data: (a) knowing who I am and keeping my psyche intact, and (b) knowing what I need and fighting for it. Exemplar quotations illustrate the diverse dimensions of self-advocacy. In addition, a working female-centric definition of self-advocacy was attained.
CONCLUSIONS
Women have varying experiences with cancer- and treatment-related symptoms, but share a common process for recognizing and meeting their needs. Self-advocacy was defined as a process of learning one's needs and priorities as a cancer survivor and negotiating with healthcare teams, social supports, and other survivors to meet these needs.
INTERPRETATION
This phenomenologic process identified key dimensions and a preliminary definition of self-advocacy that nurses can recognize and support when patients seek and receive care consistent with their own needs and preferences.
KNOWLEDGE TRANSLATION
Self-advocacy among female cancer survivors is a process of recognizing one's needs and priorities and fighting for them within their cancer care and life. Practitioners can support female cancer survivors through the process of self-advocacy by providing them with skills and resources in making informed choices for themselves.
目的/目标：探讨卵巢癌幸存者在症状管理中自我主张的经历。
研究方法
描述性定性研究。
研究背景
城市环境中的一家公共咖啡馆。
参与者
13名年龄在26 - 69岁之间的卵巢癌幸存者，平均年龄为51.31岁。
方法学途径
组成了5个焦点小组。焦点小组讨论进行了录音并逐字转录。使用带有轴心编码的持续比较法对内容进行分析。在每次焦点小组会议后的一到五个月内，通过电话对13名参与者中的5名进行了深入访谈，以澄清和扩展已确定的主题。将初步研究结果分享给所有参与者以进行验证。
研究结果
数据中出现了两个主要主题：（a）了解自己并保持心理完整，以及（b）了解自己的需求并为之奋斗。示例引语说明了自我主张的不同维度。此外，还得出了一个以职业女性为中心的自我主张定义。
结论
女性在癌症及治疗相关症状方面有不同经历，但在认识和满足自身需求方面有共同过程。自我主张被定义为作为癌症幸存者了解自己的需求和优先事项，并与医疗团队、社会支持以及其他幸存者协商以满足这些需求的过程。
解读
这一现象学过程确定了自我主张的关键维度和初步定义，护士在患者寻求并接受符合其自身需求和偏好的护理时能够识别并提供支持。
知识转化
女性癌症幸存者的自我主张是在癌症护理和生活中认识自己的需求和优先事项并为之奋斗的过程。从业者可以通过为女性癌症幸存者提供自我主张过程中的技能和资源，帮助她们为自己做出明智选择，从而支持她们。
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