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特应性皮炎患儿的治疗性患者教育:关于目标和建议的立场文件

Therapeutic patient education in children with atopic dermatitis: position paper on objectives and recommendations.

作者信息

Barbarot Sébastien, Bernier Claire, Deleuran Mette, De Raeve Linda, Eichenfield Lawrence, El Hachem May, Gelmetti Carlo, Gieler Uwe, Lio Peter, Marcoux Danielle, Morren Marie-Anne, Torrelo Antonio, Stalder Jean Francois

机构信息

Department of Dermatology, Nantes University Hospital, Nantes, France.

出版信息

Pediatr Dermatol. 2013 Mar-Apr;30(2):199-206. doi: 10.1111/pde.12045.

Abstract

Poor adherence is frequent in patients with atopic dermatitis (AD), leading to therapeutic failure. Therapeutic patient education (TPE) helps patients with chronic disease to acquire or maintain the skills they need to manage their chronic disease. After a review of the literature, a group of multispecialty physicians, nurses, psychologists, and patients worked together during two international workshops to develop common recommendations for TPE in AD. These recommendations were structured as answers to nine frequently asked questions about TPE in AD: What is TPE and what are its underlying principles? Why use TPE in the management of AD? Who should benefit from TPE in AD? How can TPE be organized for AD? What is the assessment process for TPE in AD? What is the evidence of the benefit of TPE in AD? Who are the people involved in TPE? How should TPE be funded in dermatology? What are the limits of the TPE process?

摘要

特应性皮炎(AD)患者的依从性差很常见,这会导致治疗失败。治疗性患者教育(TPE)可帮助慢性病患者获得或维持管理其慢性病所需的技能。在对文献进行综述后,一组多专科医生、护士、心理学家和患者在两次国际研讨会上共同努力,制定了AD中TPE的通用建议。这些建议被构建为对关于AD中TPE的九个常见问题的回答:什么是TPE及其基本原则是什么?为什么在AD管理中使用TPE?谁应该从AD中的TPE中受益?如何为AD组织TPE?AD中TPE的评估过程是什么?AD中TPE益处的证据是什么?参与TPE的人员有哪些?皮肤科的TPE应如何筹资?TPE过程的局限性是什么?

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