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特应性皮炎的治疗性患者教育。

Therapeutic patient education in atopic eczema.

机构信息

Service de Dermatologie, Ecole de l'atopie, CHU de Nante, CHU Hotel Dieu, Nantes, 44035, France.

出版信息

Br J Dermatol. 2014 Jul;170 Suppl 1:44-8. doi: 10.1111/bjd.12932. Epub 2014 May 9.

Abstract

Therapeutic patient education (TPE) is a patient-centred process that entails the transfer of skills (e.g. self-management, treatment adaptation) from a trained healthcare professional to patients and/or their carers. TPE has been shown to help improve adherence, prevent complications, and improve quality of life (QoL) in chronic illnesses such as diabetes, asthma and cardiovascular disease. Recently, TPE recommendations for patients with atopic eczema have been proposed. TPE is a four-step process: understanding the patient's knowledge, beliefs and hopes; setting age-appropriate educational objectives; helping the patient (or carer) to acquire skills; and assessing the success of the programme. TPE programmes always involve a multidisciplinary team of healthcare professionals, including nurses, psychologists, doctors and dieticians who are expert in the disease area. TPE should be offered to (never forced upon) any patient who has experienced treatment failure, or to families who feel they lack social support. High-quality TPE programmes should be evidence-based, tailored to a patient's individual educational and cultural background (rather than being standardized in form and content), and have well-defined content and activities.

摘要

治疗性患者教育(TPE)是以患者为中心的过程,需要将技能(例如自我管理、治疗适应)从经过培训的医疗保健专业人员转移到患者和/或其照顾者身上。TPE 已被证明有助于改善依从性、预防并发症和提高糖尿病、哮喘和心血管疾病等慢性病的生活质量(QoL)。最近,已经提出了针对特应性皮炎患者的 TPE 建议。TPE 是一个四步过程:了解患者的知识、信念和希望;设定适合年龄的教育目标;帮助患者(或照顾者)获得技能;并评估计划的成功。TPE 计划总是涉及包括护士、心理学家、医生和营养师在内的多学科医疗保健专业人员团队,他们在疾病领域具有专业知识。应该向任何经历过治疗失败的患者(或感到缺乏社会支持的家庭)提供 TPE,而不是强迫他们接受。高质量的 TPE 计划应该基于证据,针对患者的个体教育和文化背景进行定制(而不是在形式和内容上标准化),并且具有明确的内容和活动。

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