Sentell Tetine, Dela Cruz May Rose, Heo Hyun-Hee, Braun Kathryn L
Office of Public Health Studies, John A. Burns School of Medicine, University of Hawai'i, 1960 East-West Road, Biomed, D-104, Honolulu, HI, 96822, USA.
J Cancer Educ. 2013 Jun;28(2):325-34. doi: 10.1007/s13187-013-0471-3.
Native Hawaiians and Filipinos are disproportionately impacted by cancer and are less likely to participate in cancer screening than whites. Limited information exists about health information pathways and health communication challenges as they relate to cancer screening in these groups. Six focus groups (n=77) of Native Hawaiian and Filipino women age 40+years were conducted to investigate these research gaps. Participants noted many health information challenges. Challenges were both practical and interpersonal and included both written and oral health communication. Practical challenges included "big" words, complexity of terms, and lack of plain English. Interpersonal issues included doctors rushing, doctors not assessing comprehension, and doctors treating respondents as patients not people. Women noted that they would often not ask questions even when they knew they did not understand because they did not want the provider to think negatively of them. Overarching themes to improve cancer communication gaps included: (1) the importance of family and community in health information dissemination, (2) the key role women play in interpreting health information for others, (3) the importance of personal experience and relationships to the salience of health information, and (4) the desire for local cultural relevance in health communication. Findings are discussed in light of the 2010 National Action Plan for Health Literacy.
夏威夷原住民和菲律宾人受癌症影响的比例过高,而且与白人相比,他们参与癌症筛查的可能性较小。关于这些群体中与癌症筛查相关的健康信息传播途径和健康沟通挑战,现有的信息有限。我们对77名年龄在40岁及以上的夏威夷原住民和菲律宾女性进行了六个焦点小组访谈,以调查这些研究空白。参与者指出了许多健康信息方面的挑战。这些挑战既有实际层面的,也有人际层面的,包括书面和口头健康沟通。实际挑战包括术语“生僻”、用词复杂以及缺乏通俗易懂的英语表达。人际问题包括医生语速过快、不评估患者的理解情况以及医生将受访者当作患者而非个体来对待。女性们表示,即使她们知道自己不理解,也常常不会提问,因为她们不想让医护人员对自己有负面看法。改善癌症沟通差距的总体主题包括:(1)家庭和社区在健康信息传播中的重要性;(2)女性在为他人解读健康信息方面所起的关键作用;(3)个人经历和人际关系对健康信息显著性的重要性;(4)健康沟通中对当地文化相关性的需求。我们根据《2010年国家健康素养行动计划》对研究结果进行了讨论。