ANMCO Research Center, Florence, Italy.
Eur J Heart Fail. 2013 Jul;15(7):808-17. doi: 10.1093/eurjhf/hft050. Epub 2013 Mar 28.
The ESC-HF Pilot survey was aimed to describe clinical epidemiology and 1-year outcomes of outpatients and inpatients with heart failure (HF). The pilot phase was also specifically aimed at validating structure, performance, and quality of the data set for continuing the survey into a permanent Registry.
The ESC-HF Pilot study is a prospective, multicentre, observational survey conducted in 136 Cardiology Centres in 12 European countries selected to represent the different health systems across Europe. All outpatients with HF and patients admitted for acute HF on 1 day per week for eight consecutive months were included. From October 2009 to May 2010, 5118 patients were included: 1892 (37%) admitted for acute HF and 3226 (63%) patients with chronic HF. The all-cause mortality rate at 1 year was 17.4% in acute HF and 7.2% in chronic stable HF. One-year hospitalization rates were 43.9% and 31.9%, respectively, in hospitalized acute and chronic HF patients. Major regional differences in 1-year mortality were observed that could be explained by differences in characteristics and treatment of the patients.
The ESC-HF Pilot survey confirmed that acute HF is still associated with a very poor medium-term prognosis, while the widespread adoption of evidence-based treatments in patients with chronic HF seems to have improved their outcome profile. Differences across countries may be due to different local medical practice as well to differences in healthcare systems. This pilot study also offered the opportunity to refine the organizational structure for a long-term extended European network.
ESC-HF 试点研究旨在描述心力衰竭（HF）门诊和住院患者的临床流行病学和 1 年结局。试点阶段还特别旨在验证结构、表现和数据集的质量，以便将调查继续纳入永久性注册中心。
ESC-HF 试点研究是一项前瞻性、多中心、观察性研究，在欧洲 12 个国家的 136 个心脏病学中心进行，这些中心代表了整个欧洲不同的卫生系统。每周选择一天，连续 8 个月纳入所有 HF 门诊患者和急性 HF 住院患者。2009 年 10 月至 2010 年 5 月，共纳入 5118 例患者：1892 例（37%）为急性 HF 住院患者，3226 例（63%）为慢性 HF 患者。急性 HF 患者 1 年全因死亡率为 17.4%，慢性稳定 HF 患者为 7.2%。急性和慢性 HF 住院患者的 1 年住院率分别为 43.9%和 31.9%。观察到 1 年死亡率存在明显的地区差异，这可以用患者的特征和治疗差异来解释。
ESC-HF 试点研究证实，急性 HF 仍与非常差的中期预后相关，而慢性 HF 患者广泛采用循证治疗似乎改善了他们的预后。各国之间的差异可能是由于不同的当地医疗实践以及医疗保健系统的差异。这项试点研究还为长期扩展的欧洲网络提供了优化组织结构的机会。
