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美国非裔乳腺癌幸存者中存在的化疗脑问题:一项定性研究。

Chemobrain in underserved African American breast cancer survivors: a qualitative study.

作者信息

Rust Connie, Davis Cindy

机构信息

South College of Pharmacy, Knoxville, TN, USA.

出版信息

Clin J Oncol Nurs. 2013 Apr;17(2):E29-34. doi: 10.1188/13.CJON.E29-E34.

DOI:10.1188/13.CJON.E29-E34
PMID:23538262
Abstract

Although research has been conducted to address specific medical and psychosocial needs of breast cancer survivors, little has been done to address needs along the entire trajectory of care. One such need is chemobrain, a phenomenon recognized as an identifiable psychosocial cognitive change in breast cancer survivors. The purpose of this article is to present the findings of a qualitative study conducted with two focus groups of underserved African American breast cancer survivors. Four themes emerged from the transcribed interviews: the concept of chemobrain, variability among individuals, the stigma of chemobrain, and methods of coping. In addition, findings revealed that health professionals were not used by the participants as a resource to address the issues of chemobrain, which holds significant implications for practice. That fact highlights the implications for oncology nursing with respect to providing education and support for patients experiencing chemobrain. Nursing professionals are in a position to be a frontline resource for breast cancer survivors, providing information, education, and coping methods to help improve their quality of life.

摘要

尽管已经开展了相关研究来满足乳腺癌幸存者特定的医疗和心理社会需求,但在满足整个护理过程中的需求方面做得很少。其中一个需求就是“化疗脑”,这是一种在乳腺癌幸存者中被认为是可识别的心理社会认知变化的现象。本文的目的是呈现一项针对两组未得到充分服务的非裔美国乳腺癌幸存者进行的焦点小组定性研究的结果。从转录访谈中出现了四个主题:化疗脑的概念、个体间的差异、化疗脑的污名以及应对方法。此外,研究结果显示参与者并未将健康专业人员作为解决化疗脑问题的资源,这对实践具有重要意义。这一事实凸显了肿瘤护理在为经历化疗脑的患者提供教育和支持方面的意义。护理专业人员有能力成为乳腺癌幸存者的一线资源,提供信息、教育和应对方法,以帮助改善他们的生活质量。

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