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世界心脏联合会关于预防和控制风湿性心脏病的立场声明。

Position statement of the World Heart Federation on the prevention and control of rheumatic heart disease.

机构信息

World Heart Federation, 7 rue des Battoirs, Case Postale 155, 1211 Geneva 4, Switzerland.

出版信息

Nat Rev Cardiol. 2013 May;10(5):284-92. doi: 10.1038/nrcardio.2013.34. Epub 2013 Apr 2.

DOI:10.1038/nrcardio.2013.34
PMID:23546444
Abstract

In the 21(st) century, rheumatic fever (RF) and rheumatic heart disease (RHD) are neglected diseases of marginalized communities. Globally, RHD remains the most-common cardiovascular disease in young people aged <25 years. Although RF and RHD have been almost eradicated in areas with established economies, migration from low-income to high-income settings might be responsible for a new burden of RHD in high-income countries. The World Heart Federation (WHF) and its Working Group on RF and RHD unites global experts, combines their experience and enthusiasm, and provides a platform for RHD control. This paper is a declaration of the WHF institutional strategic goal--a 25% reduction in premature deaths from RF and RHD among individuals aged <25 years by the year 2025. The position statement affirms WHF commitments to five key strategic targets: comprehensive register-based control programmes, global access to benzathine penicillin G, identification and development of public figures as 'RHD champions', expansion of RHD training hubs, and support for vaccine development. In this paper, we also review existing barriers to RF and RHD control and identify the actions required to change the trajectory of control for these diseases. This approach provides the foundation for governments, civil society, patient advocates, clinicians, researchers, and funding agencies to develop partnerships and unify global efforts to control RF and RHD. The WHF plans to expand this position statement to an operational plan that will be founded on science, research, and quantifiable progress indicators to impact positively on the millions of people who are affected by RHD and its long-term sequelae.

摘要

在 21 世纪,风湿热(RF)和风湿性心脏病(RHD)是被边缘化社区忽视的疾病。在全球范围内,RHD 仍然是 25 岁以下年轻人中最常见的心血管疾病。尽管在经济发达地区,RF 和 RHD 已几乎被根除,但从低收入国家向高收入国家的移民可能导致高收入国家出现新的 RHD 负担。世界心脏联盟(WHF)及其 RF 和 RHD 工作组联合了全球专家,结合他们的经验和热情,为 RHD 控制提供了一个平台。本文是 WHF 机构战略目标的宣言——到 2025 年,将 25 岁以下人群因 RF 和 RHD 而导致的过早死亡人数减少 25%。该立场声明肯定了 WHF 对五个关键战略目标的承诺:全面基于登记的控制计划、全球获得苄星青霉素 G、确定和培养“RHD 冠军”、扩大 RHD 培训中心以及支持疫苗开发。在本文中,我们还回顾了 RF 和 RHD 控制存在的障碍,并确定了改变这些疾病控制轨迹所需的行动。这种方法为政府、民间社会、患者权益倡导者、临床医生、研究人员和资助机构提供了基础,以建立伙伴关系并统一全球努力,以控制 RF 和 RHD。WHF 计划将这一立场声明扩展为一项行动计划,该计划将基于科学、研究和可量化的进展指标,对受 RHD 及其长期后果影响的数百万人产生积极影响。

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