Academic Palliative and Supportive Care Studies Group, Institute of Psychology, Health and Society, Waterhouse Buildings, University of Liverpool, Liverpool, UK.
QJM. 2013 Jun;106(6):491-4. doi: 10.1093/qjmed/hct078. Epub 2013 Apr 4.
It is estimated that there are 35.6 million people with dementia worldwide and this is projected to increase to over 115 million by the year 2050. Dementia is a progressive neurodegenerative disease that significantly reduces survival. End-of-life care received by this group is often poor and does not equate to that offered in other life limiting illnesses. This review highlights results from a large UK study of informal carers of people with dementia to explore what are determinants of care for people with dementia and their family carers. New perspectives as to models of care for end-of-life care for patients with dementia are discussed together with how these may be implemented and delivered within wider community settings and contexts, where many people with dementia may be cared for in the future.
据估计,全球有 3560 万人患有痴呆症,预计到 2050 年这一数字将增至 1.15 亿以上。痴呆症是一种进行性神经退行性疾病,会显著降低生存率。这一群体接受的临终关怀往往很差,与其他生命有限的疾病所提供的关怀并不等同。本综述重点介绍了一项英国大型痴呆症患者家属研究的结果,旨在探讨痴呆症患者及其家庭护理人员的护理决定因素。本文还讨论了为痴呆症患者提供临终关怀的新护理模式,并探讨了如何在更广泛的社区环境和背景下实施和提供这些模式,因为未来可能有许多痴呆症患者将在这些环境中得到照顾。