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灾难后利用网络平台进行支持与研究:机遇与经验教训

Use of a web portal for support and research after a disaster: opportunities and lessons learned.

作者信息

Marres Geertruid Mh, Leenen Luke Ph, van der Slikke Johannes W, Vermetten Eric

机构信息

University Medical Centre Utecht, Central Military Hospital, Major Incident Hospital, Utrecht, Netherlands.

出版信息

Interact J Med Res. 2012 Nov 21;1(2):e18. doi: 10.2196/ijmr.1588.

DOI:10.2196/ijmr.1588
PMID:23612349
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3626128/
Abstract

BACKGROUND

In this report we describe the development and use of a web portal in the aftermath of the 2004 tsunami. This large scale disaster confronted many displaced people with death, despair and need for information and support. Awareness and insight in the emotional impact of disasters can provide opportunities for surveillance and early treatment. Moreover, online support systems can contribute to community building, empowerment of victims and resilience.

OBJECTIVE

We evaluate the development and use of a multilingual web portal that combined a platform for information, emotional support, self assessment and referral with research opportunities. The rapid development, use, advantages, difficulties and learning points are discussed.

METHODS

A multidisciplinary working group from the University Medical Centre Utrecht, the Major Incident Hospital and the Central Military Hospital developed a web portal for tsunami victims. The webportal combined: (1) a forum aimed at community building, (2) self assessment tools that in the same time function as a reseach survey, (3) e-consultation, and (4) an information portal.

RESULTS

Within 3 weeks after the tsunami, the working group launched an open, online service (www.TISEI.org. Tsunami Intrenational Survey on Emotional Impact) to foster community) support in the aftermath of the disaster. It combined four functionalities that were earlier previously only used separately. The portal had over 36.800 unique visitors in the first two years. At least 31% (144/464) percent of the Dutch surviving victims could be reached for a survey through the site. The TISEI-environment was available in 15 languages and visitors came from all over the world. Ninety-five percent of all visitors came from Europe or the United States. Subsequent to immediate disaster support, the web portal also served as a memorial archive for anniversary meetings and follow-up incentives. Difficulties we experienced were lack of funding, time pressure, victim-anonymisation, international collaboration and long term maintenance.

CONCLUSIONS

A multilingual website with combined modalities for emotional care and research after a natural disaster proved feasible. Web based services like www.TISEI.org in the aftermath of mass disasters can help community building and deliver low level, patient centred and easily accessible information and care. A multilingual website with combined modalities for emotional care and research after a natural disaster proved feasible. Growing Internet penetration world wide and especially the rapid expansion and influence of online communities enables delivery of care and perform research with the internetInternet as a platform. The unpredictable nature of disaster does put time pressure on the development of online solutions and influenced the yield of our site. This highlights the necessity of developing methods and (inter) national collaborations in advance, secure funding, and learn from earlier initiatives.

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/adc496c82da0/ijmr_v1i2e18_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/a3c8c8e3c825/ijmr_v1i2e18_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/e7ffc190a1dc/ijmr_v1i2e18_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/adc496c82da0/ijmr_v1i2e18_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/a3c8c8e3c825/ijmr_v1i2e18_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/e7ffc190a1dc/ijmr_v1i2e18_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6174/3626128/adc496c82da0/ijmr_v1i2e18_fig3.jpg
摘要

背景

在本报告中,我们描述了2004年海啸后一个网络门户的开发与使用情况。这场大规模灾难使许多流离失所者面临死亡、绝望以及对信息和支持的需求。了解灾难对情绪的影响并洞察其影响,可为监测和早期治疗提供机会。此外,在线支持系统有助于社区建设、增强受害者的权能以及恢复力。

目的

我们评估了一个多语言网络门户的开发与使用情况,该门户将一个信息、情感支持、自我评估和转介平台与研究机会结合在一起。讨论了其快速开发、使用、优势、困难和经验教训。

方法

来自乌得勒支大学医学中心、重大事件医院和中央军事医院的一个多学科工作小组为海啸受害者开发了一个网络门户。该网络门户结合了:(1)一个旨在社区建设的论坛;(2)同时用作研究调查的自我评估工具;(3)电子咨询;以及(4)一个信息门户。

结果

海啸发生后的3周内,该工作小组推出了一项开放的在线服务(www.TISEI.org. 海啸国际情绪影响调查),以在灾难后促进社区支持。它结合了四种以前仅单独使用的功能。该门户在头两年有超过36800名独立访客。通过该网站,至少31%(144/464)的荷兰幸存受害者能够被联系到参与一项调查。TISEI环境有15种语言版本,访客来自世界各地。所有访客中有95%来自欧洲或美国。在提供即时灾难支持之后,该网络门户还作为周年纪念会议和后续激励措施的纪念档案库。我们遇到的困难包括资金短缺、时间压力、受害者匿名化、国际合作以及长期维护。

结论

一个用于自然灾害后情感关怀和研究的多语言综合网站被证明是可行的。像www.TISEI.org这样的基于网络的服务在大规模灾难后有助于社区建设,并提供低层次、以患者为中心且易于获取的信息和关怀。一个用于自然灾害后情感关怀和研究的多语言综合网站被证明是可行的。全球互联网普及率的不断提高,尤其是在线社区的迅速扩张和影响,使得能够以互联网为平台提供关怀和开展研究。灾难的不可预测性确实给在线解决方案的开发带来了时间压力,并影响了我们网站的成效。这凸显了提前开发方法和(跨)国际合作、确保资金以及借鉴早期举措的必要性。

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