Hospital La Paz Institute for Health Research (IdiPaz), Madrid, Spain. mteresa.caballero @ idipaz.es
Int Arch Allergy Immunol. 2013;161 Suppl 1:10-6. doi: 10.1159/000351233. Epub 2013 May 28.
Results from a 16-question survey about self-administration of hereditary angioedema (HAE) therapy, administered in Europe, Canada and the USA, were used to guide discussion at an international HAE expert meeting. The aim was to capture information about current practice in self-administered HAE therapy in these countries, including self-administration training, the key benefits of switching to self-administration, the barriers to self-administration and trends in self-administration. Overall, switching to self-administration therapy is looked upon favourably from both patient and clinician perspectives by virtue of the potential improvement in quality of life arising from optimisation of therapy and early intervention. The recent changes to product licences allowing self-administration provide additional options for the management of HAE.
利用在欧洲、加拿大和美国开展的一项关于遗传性血管性水肿(HAE)治疗自我管理的 16 个问题调查结果,为国际 HAE 专家会议的讨论提供了指导。目的是获取这些国家 HAE 治疗自我管理的当前实践信息,包括自我管理培训、转为自我管理的主要获益、自我管理障碍以及自我管理的趋势。总体而言,从患者和临床医生的角度来看,转为自我管理治疗具有积极意义,因为通过优化治疗和早期干预有可能提高生活质量。最近产品许可证的变更允许自我管理,为 HAE 的管理提供了更多选择。