• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

欧洲、加拿大和美国各地区在遗传性血管性水肿管理中实施自我管理培训的现状。

Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of hereditary angioedema.

机构信息

Hospital La Paz Institute for Health Research (IdiPaz), Madrid, Spain. mteresa.caballero @ idipaz.es

出版信息

Int Arch Allergy Immunol. 2013;161 Suppl 1:10-6. doi: 10.1159/000351233. Epub 2013 May 28.

DOI:10.1159/000351233
PMID:23689239
Abstract

Results from a 16-question survey about self-administration of hereditary angioedema (HAE) therapy, administered in Europe, Canada and the USA, were used to guide discussion at an international HAE expert meeting. The aim was to capture information about current practice in self-administered HAE therapy in these countries, including self-administration training, the key benefits of switching to self-administration, the barriers to self-administration and trends in self-administration. Overall, switching to self-administration therapy is looked upon favourably from both patient and clinician perspectives by virtue of the potential improvement in quality of life arising from optimisation of therapy and early intervention. The recent changes to product licences allowing self-administration provide additional options for the management of HAE.

摘要

利用在欧洲、加拿大和美国开展的一项关于遗传性血管性水肿(HAE)治疗自我管理的 16 个问题调查结果,为国际 HAE 专家会议的讨论提供了指导。目的是获取这些国家 HAE 治疗自我管理的当前实践信息,包括自我管理培训、转为自我管理的主要获益、自我管理障碍以及自我管理的趋势。总体而言,从患者和临床医生的角度来看,转为自我管理治疗具有积极意义,因为通过优化治疗和早期干预有可能提高生活质量。最近产品许可证的变更允许自我管理,为 HAE 的管理提供了更多选择。

相似文献

1
Current status of implementation of self-administration training in various regions of Europe, Canada and the USA in the management of hereditary angioedema.欧洲、加拿大和美国各地区在遗传性血管性水肿管理中实施自我管理培训的现状。
Int Arch Allergy Immunol. 2013;161 Suppl 1:10-6. doi: 10.1159/000351233. Epub 2013 May 28.
2
Challenges of C1-inhibitor concentrate self-administration.C1 抑制剂浓缩物自我给药的挑战。
Int Arch Allergy Immunol. 2013;161 Suppl 1:21-5. doi: 10.1159/000351238. Epub 2013 May 28.
3
Practical approach to self-administration of intravenous C1-INH concentrate: a nursing perspective.静脉注射 C1-INH 浓缩物的自我给药实用方法:护理视角。
Int Arch Allergy Immunol. 2013;161 Suppl 1:17-20. doi: 10.1159/000351236. Epub 2013 May 28.
4
Training hereditary angioedema patients to self-administer intravenous C1 esterase inhibitor concentrate.培训遗传性血管性水肿患者自行静脉注射C1酯酶抑制剂浓缩物。
J Infus Nurs. 2014 Jul-Aug;37(4):284-90. doi: 10.1097/NAN.0000000000000049.
5
Self-administration of intravenous C1-inhibitor therapy for hereditary angioedema and associated quality of life benefits.遗传性血管性水肿的静脉注射C1抑制剂自我给药疗法及其相关的生活质量益处。
Eur J Dermatol. 2009 Mar-Apr;19(2):147-51. doi: 10.1684/ejd.2008.0603.
6
Hereditary angioedema therapies in the United States: movement toward an international treatment consensus.美国遗传性血管性水肿治疗:向国际治疗共识迈进。
Clin Ther. 2012 Mar;34(3):623-30. doi: 10.1016/j.clinthera.2012.02.003. Epub 2012 Mar 2.
7
Hereditary angioedema treatment options: the availability of new therapies.遗传性血管性水肿治疗选择:新疗法的可及性。
Ann Med. 2012 Sep;44(6):523-9. doi: 10.3109/07853890.2012.687833. Epub 2012 Jul 11.
8
Summary of the International Multicenter Prospective Angioedema C1-inhibitor Trials 1 and 2 (IMPACT1 and 2).国际多中心前瞻性血管性水肿 C1 抑制剂试验 1 和 2(IMPACT1 和 2)总结。
Expert Rev Clin Immunol. 2010 May;6(3):327-34. doi: 10.1586/eci.10.19.
9
Review of recent guidelines and consensus statements on hereditary angioedema therapy with focus on self-administration.近期遗传性血管性水肿治疗指南和共识的回顾,重点关注自我给药。
Int Arch Allergy Immunol. 2013;161 Suppl 1:3-9. doi: 10.1159/000351232. Epub 2013 May 28.
10
Recent advances in hereditary angioedema self-administration treatment: summary of an International Hereditary Angioedema Expert Meeting.遗传性血管性水肿自我给药治疗的最新进展:一次国际遗传性血管性水肿专家会议总结
Int Arch Allergy Immunol. 2013;161 Suppl 1:26-7. doi: 10.1159/000351241. Epub 2013 May 28.

引用本文的文献

1
Neurologic and Psychiatric Manifestations of Bradykinin-Mediated Angioedema: Old and New Challenges.缓激肽介导的血管性水肿的神经和精神表现:旧的和新的挑战。
Int J Mol Sci. 2023 Jul 29;24(15):12184. doi: 10.3390/ijms241512184.
2
Augmentation Therapy for Alpha-1 Antitrypsin Deficiency: Patient Experiences With Self-Infusion, Home Providers, and Clinics.α-1抗胰蛋白酶缺乏症的增强治疗:患者自我注射、家庭护理人员及诊所的经历
Chronic Obstr Pulm Dis. 2023 Oct 26;10(4):392-399. doi: 10.15326/jcopdf.2023.0430.
3
Considerations for transition from subcutaneous to oral prophylaxis in the treatment of hereditary angioedema.
遗传性血管性水肿治疗中从皮下预防过渡到口服预防的考量
Allergy Asthma Clin Immunol. 2021 Oct 9;17(1):100. doi: 10.1186/s13223-021-00603-9.
4
Psychology and hereditary angioedema: A systematic review.心理学与遗传性血管性水肿:系统评价。
Allergy Asthma Proc. 2021 Jan 1;42(1):e1-e7. doi: 10.2500/aap.2021.42.200073.
5
Training patients for self-administration of a new subcutaneous C1-inhibitor concentrate for hereditary angioedema.对患者进行培训,使其能够自行注射一种用于遗传性血管性水肿的新型皮下注射C1抑制剂浓缩物。
Nurs Open. 2018 Aug 28;6(1):126-135. doi: 10.1002/nop2.194. eCollection 2019 Jan.
6
Practicalities of a reduced volume formulation of a C1-INH concentrate for the treatment of hereditary angioedema: real-life experience.用于治疗遗传性血管性水肿的C1-INH浓缩物减量制剂的实际应用:真实生活经验
Allergy Asthma Clin Immunol. 2018 Oct 25;14:44. doi: 10.1186/s13223-018-0267-4. eCollection 2018.
7
Real-world outcomes in hereditary angioedema: first experience from the Icatibant Outcome Survey in the United Kingdom.遗传性血管性水肿的真实世界结局:英国依卡替班结局调查的首次经验
Allergy Asthma Clin Immunol. 2018 Aug 6;14:28. doi: 10.1186/s13223-018-0253-x. eCollection 2018.
8
Value co-creation in healthcare: evidence from innovative therapeutic alternatives for hereditary angioedema.医疗保健中的价值共创:来自遗传性血管性水肿创新治疗替代方案的证据。
BMC Health Serv Res. 2018 Jul 20;18(1):571. doi: 10.1186/s12913-018-3389-y.
9
Comparison of the Frequency of Angioedema Attack, before and during Pregnancy, in a Patient with Type I Hereditary Angioedema.I型遗传性血管性水肿患者孕期前后血管性水肿发作频率的比较
Intern Med. 2018 Mar 1;57(5):751-755. doi: 10.2169/internalmedicine.9407-17. Epub 2017 Nov 1.
10
High attack frequency in patients with angioedema due to C1-inhibitor deficiency is a major determinant in switching to home therapy: a real-life observational study.C1抑制剂缺乏所致血管性水肿患者的高发作频率是转向家庭治疗的主要决定因素:一项真实世界观察性研究
Orphanet J Rare Dis. 2016 Sep 29;11(1):133. doi: 10.1186/s13023-016-0518-8.