Oncology and Haematology Clinical Trials Office, University Hospitals of Leicester NHS Trust, Leicester, UK.
Eur J Cancer Care (Engl). 2013 Sep;22(5):653-62. doi: 10.1111/ecc.12074. Epub 2013 May 23.
This study investigated how doctors and patients diagnosed with advanced incurable cancer experienced the disclosure of bad news. The intention was to gain contrasting perspectives of the processes involved in oncology consultations. Sixteen doctors and 16 patients from a cancer centre in the UK participated in the study. A series of consultations were observed and audio recorded, and the perspectives of doctors, patients and relatives were investigated through semi-structured interviews. Participants were invited to describe how they experienced and felt about the disclosure of information over a period of time following a specific consultation. Analysis was based on a constant comparative method. This research suggests that patients control what they do or do not do with information to meet their own needs and objectives, but doctors do not necessarily appreciate this. Doctors do not always prepare patients for what is happening to them in an active open awareness context, and this can be stressful for some patients. The results indicate that communication is not just about one person making decisions. They also indicate that in many cases more success could be gained from finding out how patients prefer to manage and control the exchange of bad news, at different points, through their care pathway.
本研究调查了患有晚期绝症的医生和患者如何经历坏消息的披露。目的是获得肿瘤学咨询中所涉及过程的对比观点。英国癌症中心的 16 名医生和 16 名患者参与了这项研究。观察并录制了一系列咨询过程,并通过半结构化访谈调查了医生、患者和家属的观点。参与者被邀请描述他们在特定咨询后一段时间内是如何体验和感受信息披露的。分析基于不断比较的方法。这项研究表明,患者会控制自己对信息的处理方式,以满足自己的需求和目标,但医生并不一定理解这一点。医生并不总是在积极的开放意识背景下为患者准备即将发生的事情,这对一些患者来说可能会带来压力。研究结果表明,沟通不仅仅是一个人做出决定。它们还表明,在许多情况下,通过了解患者在其治疗过程中的不同阶段更愿意如何管理和控制坏消息的交流,可以取得更大的成功。