Bursch Heide Christine, Butcher Howard Karl
The University of Iowa, College of Nursing, Iowa City, IA, USA.
Res Gerontol Nurs. 2012 Jul;5(3):207-15. doi: 10.3928/19404921-20120605-03. Epub 2012 Jun 15.
Caring for a person with Alzheimer's disease (AD) challenges family caregivers with existential questions about what is the right thing to do for themselves and their care recipient. This study extracted themes spontaneously occurring in self-disclosure through expressive writing and sheds phenomenological insight into the deepest feelings revealed by caregivers of loved ones with AD. The personal journals of 24 caregivers were analyzed in the framework of Ricoeur's philosophy of ethics based on the concept of personal identity. Caregivers reflected on themes in friendship, self-esteem, authenticity, and capacity to act with the ethical intention to stay present while the care recipient is disappearing. Engaging the text within Ricoeur's ethically sensitive philosophy and methodology illuminated the benefit of writing interventions that allow caregivers to speak about conflicted states regarding their own humanity in the caregiver experience.
照顾患有阿尔茨海默病（AD）的人会让家庭护理人员面临一些关于自己和护理对象该做什么才是正确之事的存在主义问题。本研究通过表达性写作提取了自我表露中自然出现的主题，并对患有AD的亲人的护理人员所揭示的最深层感受进行了现象学洞察。基于个人身份概念，在里科尔的伦理哲学框架内分析了24名护理人员的个人日志。护理人员思考了友谊、自尊、真实性以及在护理对象逐渐消失时以保持在场的伦理意图采取行动的能力等主题。将文本置于里科尔具有伦理敏感性的哲学和方法论之中，阐明了写作干预的益处，这种干预使护理人员能够谈论在护理经历中关于自身人性的冲突状态。
