Pfeifer L I, Silva D B R, Lopes P B, Matsukura T S, Santos J L F, Pinto M P P
Department of Neurosciences and Behavioral Sciences, Division of Occupational Therapy, Ribeirão Preto Medical School, University of São Paulo, Ribeirão Preto, S.P., Brazil.
Child Care Health Dev. 2014 May;40(3):363-9. doi: 10.1111/cch.12077. Epub 2013 Jun 4.
To describe the perception of caregivers of children with cerebral palsy (CP) concerning social support received and to verify how the characteristics of the children (i.e. type of CP and severity of motor impairment) and those of their caregivers (i.e. age, level of education, occupation, income and number of children) are significantly related to this perception.
A total of 50 children with CP aged between 3 and 12 years and their respective caregivers participated in this study. Children were grouped in terms of type of CP and according to the severity of motor impairment through the Gross Motor Function Classification System (GMFCS). The Social Support Questionnaire (SSQ) was used to evaluate the perception of caregivers concerning the social support they receive (number of people offering support - SSQ-N index, and level of satisfaction concerning such support - SSQ-S index).
The caregivers reported receiving support from a mean of 1.67 people. Core and extended family members (i.e. husband, mother, siblings) and friends are the most common providers of support. In regard to level of satisfaction, caregivers considered the support they received to be positive, obtaining a mean of 5.52 out of a total of six points. Children's and caregivers' characteristics were not significantly related to the SSQ-N and SSQ-S indexes.
Family members are the caregivers' primary source of social support and caregivers reported being satisfied with the support they received.
描述脑瘫（CP）患儿照料者对所获得社会支持的认知，并验证患儿的特征（即脑瘫类型和运动障碍严重程度）及其照料者的特征（即年龄、教育程度、职业、收入和子女数量）与这种认知如何显著相关。
共有50名年龄在3至12岁之间的脑瘫患儿及其各自的照料者参与了本研究。通过粗大运动功能分类系统（GMFCS），根据脑瘫类型和运动障碍严重程度对患儿进行分组。使用社会支持问卷（SSQ）来评估照料者对他们所获得社会支持的认知（提供支持的人数——SSQ-N指数，以及对这种支持的满意度——SSQ-S指数）。
照料者报告平均从1.67人那里获得支持。核心家庭成员和大家庭成员（即丈夫、母亲、兄弟姐妹）以及朋友是最常见的支持提供者。在满意度方面，照料者认为他们获得的支持是积极的，在满分6分中平均获得5.52分。患儿和照料者的特征与SSQ-N和SSQ-S指数没有显著相关性。
家庭成员是照料者社会支持的主要来源，照料者报告对他们获得的支持感到满意。
