Kings Breast Care, Kings College Hospital NHS Foundation Trust, London, UK.
Eur J Cancer Care (Engl). 2013 Sep;22(5):673-83. doi: 10.1111/ecc.12076. Epub 2013 Jun 5.
This study explores the unmet supportive needs of people with breast cancer attending a London NHS Foundation Trust Hospital. A mixed methods approach was used. One hundred and one patients completed a specially designed questionnaire focusing on their concerns in the previous week, and whether they felt they had been offered sufficient support from health professionals. Seven semi-structured interviews were then completed in order to gain insight into the need for future developments of services for patients with breast cancer. Pearson's chi-squared analysis was used to examine whether symptoms reported within 1 year of diagnosis differed from symptoms reported more than 1 year post diagnosis. Fatigue was the most common concern expressed (53%) with no significant difference between the two groups. Emotional concerns and pain were also highly reported (35% and 36%). Only 32% of the questionnaire participants reported that they had been offered support in dealing with their concerns. Most participants (65%) would have liked more support from the healthcare team. From the interviews it was clear that whilst there are gaps in services available, participants were not aware of the range of services already available for people with breast cancer. The results of this study have helped to inform service development, particularly around the management of fatigue.
本研究探讨了在伦敦 NHS 基金会信托医院就诊的乳腺癌患者未满足的支持性需求。采用了混合方法。101 名患者完成了一份专门设计的问卷,重点关注他们在前一周的关注点,以及他们是否感到自己从卫生专业人员那里获得了足够的支持。然后进行了七次半结构化访谈,以深入了解乳腺癌患者未来服务发展的需求。使用 Pearson 的卡方检验来检查在诊断后 1 年内报告的症状是否与诊断后 1 年以上报告的症状不同。疲劳是表达最多的担忧(53%),两组之间没有显著差异。情绪问题和疼痛也有很高的报告率(35%和 36%)。只有 32%的问卷参与者报告说他们在处理自己的问题时得到了支持。大多数参与者(65%)希望从医疗团队获得更多支持。从访谈中可以清楚地看出,尽管服务存在差距,但参与者并不了解已经为乳腺癌患者提供的各种服务。本研究的结果有助于为服务发展提供信息,特别是在疲劳管理方面。