Department of Neurology, Nijmegen Centre for Evidence Based Practice, Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands.
Parkinsonism Relat Disord. 2013 Nov;19(11):923-7. doi: 10.1016/j.parkreldis.2013.04.022. Epub 2013 Jun 3.
Today's society is changing rapidly and individuals increasingly favor an active role in designing their own lives. Contemporary patients are no exception, but the present health care system-which is organized primarily from the provider's perspective-is not yet prepared for this development. Here, we argue that an alternative way to organize health care, namely more from the patient's perspective, may help to contain costs, while improving the quality, safety and access to care. This involves a redefinition of the patient-doctor relationship, such that patients are no longer regarded as passive objects, but rather as active subjects who work as partners with health care professionals to optimize health ('participatory medicine'). The opportunities that come with such a collaborative and patient-centered care model are reviewed within the context of patients with Parkinson's disease. We also discuss societal and Parkinson-specific barriers that could impede implementation of this alternative care model to the management of Parkinson's disease and other chronic conditions.
当今社会瞬息万变，个人越来越倾向于在设计自己的生活方面发挥积极作用。当代患者也不例外，但目前以提供者为主要视角的医疗保健体系尚未为此做好准备。在这里，我们认为，另一种组织医疗保健的方式，即更多地从患者的角度出发，可能有助于控制成本，同时提高医疗质量、安全性和可及性。这涉及重新定义医患关系，使患者不再被视为被动的对象，而是积极的主体，与医疗保健专业人员合作以优化健康（“参与式医学”）。本文将在帕金森病患者的背景下探讨这种协作和以患者为中心的护理模式所带来的机遇。我们还讨论了可能会阻碍这种替代护理模式在帕金森病及其他慢性病管理中的实施的社会和帕金森病特定障碍。
