Self-Perceived Health Assessment Research Unit, School of Medicine, La Timone University, 13005 Marseille, France.
Expert Rev Pharmacoecon Outcomes Res. 2013 Jun;13(3):343-9. doi: 10.1586/erp.13.15.
Quality of life (QoL) is of great importance to patients with schizophrenia and their families. Although the use of QoL measures may contribute to better adherence to therapeutic interventions, more satisfaction with care, improved health outcomes and reduction of health costs, QoL assessment remains underutilized in clinical practice. In this review, the authors propose a reflection on the limitations and lack of impact of QoL measures in clinical care. Our argument is based on three challenges regarding conceptual aspects and metrics, use and limits and the usefulness of measuring QoL. For each challenge, the authors have suggested pragmatic proposals and new research directions to promote the use of QoL measures in the future. These avenues of research involve a shared responsibility between QoL researchers, the medical community and decision makers. Close collaboration between all parties is necessary to promote the use of QoL measures in schizophrenia.
生活质量（QoL）对于精神分裂症患者及其家属非常重要。尽管使用 QoL 评估工具可能有助于提高治疗干预的依从性、提高对护理的满意度、改善健康结果和降低医疗成本，但在临床实践中，QoL 评估仍然未得到充分利用。在这篇综述中，作者对 QoL 评估工具在临床护理中的局限性和缺乏影响力进行了反思。我们的观点基于概念方面和指标、使用和限制以及衡量 QoL 的有用性这三个挑战。对于每个挑战，作者都提出了切实可行的建议和新的研究方向，以促进未来 QoL 评估工具的使用。这些研究途径涉及 QoL 研究人员、医学界和决策者之间的共同责任。各方之间的密切合作对于促进精神分裂症中 QoL 评估工具的使用是必要的。
