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荷兰一般人群参与预先护理计划的情况:一项横断面调查。

Involvement of the Dutch general population in advance care planning: a cross-sectional survey.

机构信息

1 Department of Public Health, Erasmus MC, University Medical Center Rotterdam , the Netherlands .

出版信息

J Palliat Med. 2013 Sep;16(9):1055-61. doi: 10.1089/jpm.2012.0555. Epub 2013 Jun 14.

Abstract

BACKGROUND AND OBJECTIVE

Advance care planning (ACP) is a process of communication among patients, health care providers, and relatives regarding end-of-life care. The aim of our study was to determine if a representative sample of the Dutch general public is currently involved or is inclined to be engaged in ACP, and to delineate the factors associated with greater engagement.

METHODS

An online questionnaire was completed by a representative sample of the Dutch general public, derived from an established Internet panel (CentERdata, University of Tilburg, The Netherlands).

RESULTS AND CONCLUSIONS

Although the majority of the Dutch population seems open to discussions about end-of-life care, our study revealed that discussions with physicians are exceedingly rare. To improve ACP as a joint process among patients, relatives, and physicians, the general public's awareness of the importance of end-of-life discussions with their physicians needs to be increased and physicians need to play a more active role by initiating conversations and dialogue regarding end-of-life care.

摘要

背景与目的

预先医疗指示(ACP)是患者、医疗服务提供者和亲属之间就临终关怀进行沟通的过程。我们的研究目的是确定荷兰普通公众中是否有代表性的样本目前正在参与或倾向于参与 ACP,并确定与更大程度参与相关的因素。

方法

从一个成熟的互联网面板(荷兰蒂尔堡大学的 CentERdata)中抽取荷兰普通公众的代表性样本,完成在线问卷调查。

结果与结论

尽管荷兰人口的大多数似乎对临终关怀的讨论持开放态度,但我们的研究表明,与医生的讨论极为罕见。为了改善患者、亲属和医生共同参与的 ACP,需要提高公众对与医生进行临终关怀讨论的重要性的认识,医生需要通过发起关于临终关怀的对话和对话来发挥更积极的作用。

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