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与丙型肝炎病毒共存:定性文献的系统评价和叙述性综合。

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature.

机构信息

The Department Community Health Sciences, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, Canada T2N 4N1.

O'Brien Institute for Public Health, Teaching, Research and Wellness Building, 3280 Hospital Drive NW, Calgary, AB, Canada T2N 4N1.

出版信息

Can J Gastroenterol Hepatol. 2017;2017:3268650. doi: 10.1155/2017/3268650. Epub 2017 Apr 26.

Abstract

. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). . Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. . 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. . Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experience of people living with HCV.

摘要

. HCV 的生活体验在文献中尚未得到很好的记录。本系统评价的目的是了解丙型肝炎病毒(HCV)感染者的生活体验。. 从建库开始到 2015 年 1 月 19 日,我们对五个数据库进行了检索。如果研究重点是诊断为 HCV 的成年人、报告 HCV 生活体验以及描述原始研究,则将其纳入研究。. 共纳入 46 项研究。研究发现,由于身体症状,参与者的生活质量下降。由于身体症状和歧视,许多参与者转为兼职工作或辞职。许多人报告说他们在医疗保健系统中有负面体验;报告的主题包括感到不被支持、没有足够的信息、不参与决策等。耻辱感对 HCV 感染者有重大影响。. 已发表的文献表明,HCV 感染者在其护理、人际关系和工作环境中常常感到受到歧视和不支持,同时还要应对身体和心理症状。这一综合研究指出了在哪些方面需要更多的教育、同情和以患者为中心的医疗保健,以改善 HCV 感染者的生活体验。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2a86/5424189/693471ffdd87/CJGH2017-3268650.001.jpg

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