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生活是向前过活,向后理解的——急性冠状动脉综合征影响体验的叙述性分析。

Life is lived forwards and understood backwards--experiences of being affected by acute coronary syndrome: a narrative analysis.

机构信息

Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.

Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.

出版信息

Int J Nurs Stud. 2014 Mar;51(3):430-7. doi: 10.1016/j.ijnurstu.2013.06.012. Epub 2013 Jul 9.

DOI:10.1016/j.ijnurstu.2013.06.012
PMID:23849045
Abstract

BACKGROUND

Patients affected by acute coronary syndrome (ACS) report several symptoms subsequent to their discharge from hospital. These symptoms prolong their sick leave and complicate their return to the normal activities of everyday life. To improve health outcomes and establish quicker recovery for these patients, there is a need to better understand patients' perceptions of their illness.

OBJECTIVE

To explore patients' experiences of ACS during their hospital stay.

DESIGN

A qualitative interpretative interview study was conducted among patients during their hospitalization for ACS.

SETTING

The study was performed in two designated coronary care units at a hospital in Sweden.

PARTICIPANTS

Twelve participants (five women and seven men; age range, 45-72 years), hospitalized with a diagnosis of ACS, were included in this study.

METHODS

Patient narratives were recorded and transcribed. The records were later analyzed using a phenomenological hermeneutic approach.

RESULTS

Patient experiences of ACS were formulated into one main theme: "awareness that life is lived forwards and understood backwards". Two minor themes predominated in this main theme. The first was a sense of "struggling to manage the acute overwhelming phase", which included four sub-themes: onset of life-threatening symptoms; fear and anxiety; being taken by surprise; and experiencing life as a hazardous adventure. The second theme was "striving to obtain a sense of inner security", which also included four sub-themes: searching for and processing the cause and its explanation; maintaining a personal explanation; dealing with concern and uncertainty; and having a readiness to negotiate with life-pattern activities.

CONCLUSIONS

Hospitalized patients affected by ACS consider the cause of the onset and prepare to optimize their future health. These patients construct personal models to explain their disease, which may persist throughout continuum of care. One way to improve health outcomes for patients with ACS is to establish a shared knowledge about the illness and formulate personal care plans that cover the hospital stay as well as possibly extending into primary care after discharge, based on the patients' point of view.

摘要

背景

患有急性冠状动脉综合征(ACS)的患者在出院后会出现多种症状。这些症状延长了他们的病假时间,使他们难以恢复正常的日常生活活动。为了改善这些患者的健康状况并促使他们更快康复,我们需要更好地了解患者对自身疾病的看法。

目的

探讨 ACS 患者在住院期间的体验。

设计

这是一项在瑞典一家医院的两个指定冠心病监护病房进行的 ACS 住院患者定性阐释性访谈研究。

地点

该研究在瑞典一家医院的两个指定冠心病监护病房进行。

参与者

本研究共纳入 12 名参与者(5 名女性,7 名男性;年龄 45-72 岁),均被诊断为 ACS 后住院。

方法

记录患者的叙述并将其转录。随后,采用现象学诠释学方法对记录进行分析。

结果

ACS 患者的体验被归纳为一个主题:“认识到生活是向前走的,理解是向后的”。该主题下主要有两个次要主题。第一个是“努力应对急性压倒性阶段”的感觉,包括四个子主题:危及生命症状的发作;恐惧和焦虑;感到意外;以及将生活视为危险的冒险。第二个主题是“努力获得内心安全感”,也包括四个子主题:寻找和处理病因及其解释;保持个人解释;应对关注和不确定性;以及准备与生活模式活动进行协商。

结论

患有 ACS 的住院患者会考虑发病原因并为优化未来健康状况做准备。这些患者构建个人模型来解释他们的疾病,这种模型可能会贯穿整个治疗过程。改善 ACS 患者健康状况的一种方法是,基于患者的观点,建立对疾病的共识,并制定个人护理计划,涵盖住院期间以及出院后可能延伸到初级保健的内容。

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