PatientsLikeMe, Research and Development, Cambridge, MA, USA.
Qual Life Res. 2014 Feb;23(1):195-203. doi: 10.1007/s11136-013-0458-x. Epub 2013 Jul 14.
The theme of ISOQOL's 19th Annual Conference in Budapest, Hungary, was The Journey of Quality of Life Research: A Path Towards Personalized Medicine. Innovations in e-health was one of four plenary panels. E-health is changing the landscape of clinical practice and health care, but the best way to leverage the many promised benefits of emerging e-health technologies is still not clear. The Innovations in e-health panel presented emerging changes in technologies and applications that will facilitate clinical decision making, improve quality and efficiency of care, engage individuals in clinical decision making, and empower them to adopt healthy behaviors. The purpose of this paper was to present emerging trends in e-health and considerations for successful adoption of new technologies, and an overview of each of the presentations in the e-health plenary. The presentations included a personal perspective on the use of technology for self-monitoring in Parkinson's disease, an overview of online social networks and emerging technologies, and the collection of patient-reported outcomes through web-based systems in clinical practice. The common thread across all the talks was the application of e-health tools to empower individuals with chronic disease to be actively engaged in the management of their health. Considerations regarding data ownership and privacy, universal access to e-health, interactivity between different types of e-health technologies, and tailoring applications to individual needs were explored.
ISOQOL 第 19 届年度会议在匈牙利布达佩斯举行,会议主题是“生活质量研究之旅:迈向个性化医学之路”。电子健康创新是四个全体会议小组之一。电子健康正在改变临床实践和医疗保健的格局,但利用新兴电子健康技术所承诺的许多好处的最佳方式仍不清楚。电子健康创新小组介绍了将促进临床决策、提高护理质量和效率、使个人参与临床决策以及使他们能够采取健康行为的技术和应用的新兴变化。本文旨在介绍电子健康领域的新兴趋势以及成功采用新技术的注意事项,并概述电子健康全体会议的所有演讲。演讲内容包括个人对帕金森病自我监测技术使用的看法、在线社交网络和新兴技术的概述,以及通过基于网络的系统在临床实践中收集患者报告的结果。所有演讲的共同主题是应用电子健康工具,使慢性病患者能够积极参与健康管理。探讨了数据所有权和隐私、电子健康的普遍获取、不同类型的电子健康技术之间的交互性以及针对个人需求定制应用程序等问题。