Institute of Psychological Medicine and Clinical Neurosciences, Cardiff University, UK.
Epilepsy Behav. 2013 Sep;28(3):379-85. doi: 10.1016/j.yebeh.2013.05.024. Epub 2013 Jul 13.
Little attention has been paid to the specific needs of people with intellectual disability and epilepsy despite evidence of increased prevalence of epilepsy, increased risk of complex epilepsy, and heightened use of health services among this group. In an attempt to address this gap, an online international survey was undertaken inviting health professionals and caregivers, both paid and family members, to share their views on the adequacy and quality of available treatment. This paper reports on the responses obtained from 113 individuals from the UK and Ireland. Findings revealed that professionals and carers differ in their expectations of treatment and with regard to maximizing communication during consultations. In addition, findings suggested that the potential of consultations to provide information for carers, as well as to allay concerns, may not be realized. Rescue medications were viewed favorably; however, respondents expressed less satisfaction with routine medications. These findings may reflect a failure by professionals to appropriately transfer knowledge of these treatments.
尽管有证据表明智力残疾和癫痫患者的癫痫患病率增加、复杂癫痫风险增加以及该群体对卫生服务的使用增加，但人们对他们的特殊需求关注甚少。为了弥补这一空白，进行了一项在线国际调查，邀请来自英国和爱尔兰的专业医疗人员和护理人员（包括有偿和家庭成员）分享他们对现有治疗方法的充分性和质量的看法。本文报告了从 113 名个人那里获得的回复。调查结果显示，专业人员和护理人员在治疗期望以及在咨询期间最大化沟通方面存在差异。此外，调查结果表明，咨询提供有关护理的信息以及减轻担忧的潜力可能没有实现。急救药物受到好评；然而，受访者对常规药物的满意度较低。这些发现可能反映出专业人员未能适当传递这些治疗方法的知识。
