Willis D S, Kilbride L, Horsburgh D, Kennedy C M
Nursing and Health Care, School of Medicine, Veterinary and Life Sciences, University of Glasgow, Glasgow, Scotland.
Nursing and Community Health, School of Health & Life Sciences, Glasgow Caledonian University, Glasgow, Scotland.
Eur J Cancer Care (Engl). 2015 Jul;24(4):473-82. doi: 10.1111/ecc.12245. Epub 2014 Oct 7.
The cancer needs of people with intellectual disabilities are increasingly being debated. This paper explores the views and experiences of paid- and family-carers when supporting women with intellectual disabilities through breast screening. An ethnographic approach was drawn on and purposive sampling methods were employed. One-to-one semi-structured interviews with 13 carers (10 paid-carers, three family-carers) were undertaken and supported by periods of focused observation on behaviour related to breast awareness and breast screening. Findings indicated that most women with intellectual disabilities needed some support but the quality and quantity of support depended upon both the woman's level of intellectual disability and who was supporting them. In terms of breast screening, the findings suggested that the women were potentially being let down at all the different stages of the breast screening process, from the arrival of the invitation letter to the experience of having a mammogram. The conclusion drawn was that there was evidence of equality of service provision but inequality of service delivery and uptake.
智障人士的癌症需求正日益受到关注。本文探讨了付费护理人员和家庭护理人员在通过乳房筛查为智障女性提供支持时的观点和经历。采用了人种志研究方法并运用了目的抽样法。对13名护理人员（10名付费护理人员、3名家庭护理人员）进行了一对一的半结构化访谈，并通过对与乳房健康意识和乳房筛查相关行为的集中观察阶段予以辅助。研究结果表明，大多数智障女性需要一些支持，但支持的质量和数量取决于女性的智障程度以及提供支持的人员。在乳房筛查方面，研究结果表明，从收到邀请函到进行乳房X光检查的整个过程中，这些女性在乳房筛查的各个不同阶段都可能受到了忽视。得出的结论是，有证据表明服务提供方面存在平等，但服务交付和接受方面存在不平等。
