Department of Dermatology, Ha'emek Medical Center, Afula, Israel.
Arch Dis Child. 2013 Sep;98(9):676-9. doi: 10.1136/archdischild-2013-303745. Epub 2013 Jul 17.
To determine the quality of life (QOL) and self-esteem of children with infantile haemangiomas using objective measures.
Twenty-one children, 5-8 years old, with a diagnosis of head or neck haemangioma measuring 2 cm or more, were compared with 22 children with no history of haemangioma.
A tertiary medical centre in the north of Israel.
Demographic and clinical details were collected, followed by two questionnaires-Paediatric Quality of Life Inventory (PedsQL) and Harter pictorial scale of Perceived Competence and Social Acceptance for young children-answered by children and parents of the two groups.
QOL and self-esteem of the children in the two groups.
There were no significant differences in QOL indices or self-perception scores between children with and without haemangioma (86.6±10.3 vs 80.1±15.07, p=0.23 and 3.62±0.2 vs 3.72±0.21, p=0.17, respectively). Interestingly, parents of children with haemangioma reported higher QOL of their children than parents of children without haemangioma (86.4±9.6 vs 77.1±14.9, p<0.03). Likewise, a positive correlation between parents' scored PedsQL and children's scored PedsQL was found (0.56, p=0.008).
The findings raise a question about aggressive as opposed to more conservative treatment, especially in the era of propranolol.
使用客观测量方法确定患有婴幼儿血管瘤儿童的生活质量（QOL）和自尊。
将 21 名年龄在 5-8 岁、患有头颈部血管瘤且瘤体直径达 2cm 或以上的儿童与 22 名无血管瘤病史的儿童进行比较。
以色列北部的一家三级医疗中心。
收集了两组儿童的人口统计学和临床详细信息，然后由两组儿童及其家长填写了两个问卷——儿童生活质量问卷（PedsQL）和哈特尔幼儿感知能力和社会接纳画像量表。
两组儿童的生活质量和自尊。
有血管瘤和无血管瘤儿童的生活质量指数或自我感知评分无显著差异（86.6±10.3 vs 80.1±15.07，p=0.23 和 3.62±0.2 vs 3.72±0.21，p=0.17）。有趣的是，有血管瘤儿童的家长报告其子女的生活质量高于无血管瘤儿童的家长（86.4±9.6 vs 77.1±14.9，p<0.03）。同样，发现家长的 PedsQL 评分与儿童的 PedsQL 评分之间呈正相关（0.56，p=0.008）。
这些发现引发了一个问题，即与更保守的治疗方法相比，是否应采用更积极的治疗方法，特别是在普萘洛尔时代。
