Being a close family member of a person with dementia living in a nursing home.

AIM AND OBJECTIVE

To illuminate how family members of persons with dementia describe their own experiences, before and after placing their relative in a nursing home.

BACKGROUND

In the Western world and with a growing population of older people, the number of persons with dementia increases. Family members often become carers in their own homes creating stressful and exhausting situation that eventually leads to relocating the person to a nursing home. This may lead to troubled conscience among family members.

METHOD AND DESIGN

This is a qualitative study with descriptive design based on interviews with ten family members to residents with dementia at one small nursing home ward. Data were analysed using content analysis.

RESULTS

Five categories were derived from data: relocating a person with dementia - a responsibility; visiting the resident - a relief or a burden; the participants taking part in and monitoring the residents' care needs; participants meeting their own needs; and thoughts about the future and resident's death. The result shows both positive and negative aspects of being a family member to persons with dementia. Family members described feeling relief as well as having a troubled conscience when placing a relative in a nursing home. They held themselves responsible for monitoring and evaluating the quality of the care. Family members expressed fearing a slow death for the person with dementia as well as for their own sake. Most felt well treated by the staff.

CONCLUSION

Family members were responsible for relocating the residents to the nursing home. This in itself was found to cause feelings of moral concerns and generating troubled conscience.

RELEVANCE TO CLINICAL PRACTICE

Staff at nursing homes needs to exercise family-centred care to benefit the persons with dementia, their family members and the staff themselves.