Collings J A
Faculty of Health, Sciences and Social Studies, Department of Social Studies, Leeds Polytechnic, England.
Soc Sci Med. 1990;31(2):165-70. doi: 10.1016/0277-9536(90)90058-z.
This study examined the association between social, psychological and physical well-being and a range of epilepsy-related and socio-demographic variables in a sample of people with epilepsy. A questionnaire method was used and the sample of 392 people with epilepsy was drawn from urban and rural epilepsy support groups in several regions of Great Britain and Ireland, and a hospital out-patients' population. The findings revealed that people's perceptions of themselves and of their epilepsy were the variables most strongly related to overall well-being, and that seizure frequency, time since diagnosis, a diagnosis of absence seizures and being employed full-time also seemed of some importance. The study's findings have implications for the management of people with epilepsy and suggest that ratings of subjective experience could be usefully incorporated into future research on social and psychological aspects of seizure disorders and other disabilities.
本研究调查了癫痫患者样本中社会、心理和身体健康状况与一系列癫痫相关及社会人口统计学变量之间的关联。采用了问卷调查法,392名癫痫患者样本来自英国和爱尔兰几个地区的城乡癫痫支持小组以及医院门诊患者群体。研究结果显示,人们对自身及癫痫的认知是与总体健康状况最密切相关的变量,癫痫发作频率、确诊时间、失神发作诊断以及全职工作似乎也具有一定重要性。该研究结果对癫痫患者的管理具有启示意义,并表明主观体验评分可有效纳入未来关于癫痫发作障碍及其他残疾的社会和心理方面的研究。