Collings J A
Faculty of Health, Sciences and Social Studies, Leeds Polytechnic, England.
Epilepsia. 1990 Jul-Aug;31(4):418-26. doi: 10.1111/j.1528-1157.1990.tb05497.x.
The study examined the self-esteem, life fulfillments, social and interpersonal difficulties, general physical health, worries, and happiness of 392 adults with epilepsy using various psychometric instruments. A questionnaire method was used, and the sample was drawn from urban and rural epilepsy support groups in several regions of Great Britain and Ireland and a hospital outpatient population. The findings indicated general low well-being among the epilepsy sample when compared with a nonepilepsy sample matched for age and sex. Factors associated with high and low well-being within the epilepsy sample were also investigated. People's perceptions of themselves and of their epilepsy were strongly related to overall well-being, and seizure frequency, ratings of certainty of diagnosis, time since diagnosis, and a diagnosis of absence seizures also seemed of some significance. From a range of background factors, only employment status showed any significant association with well-being. The research findings have implications for the management of people with epilepsy and suggest that ratings of subjective experience could be usefully incorporated into future research into the quality of life of people with epilepsy.
该研究使用多种心理测量工具，对392名成年癫痫患者的自尊、生活满意度、社交及人际困难、总体身体健康状况、担忧程度和幸福感进行了调查。研究采用问卷调查法，样本来自英国和爱尔兰多个地区的城乡癫痫支持小组以及医院门诊患者群体。研究结果表明，与年龄和性别匹配的非癫痫样本相比，癫痫样本总体幸福感较低。研究还调查了癫痫样本中与高幸福感和低幸福感相关的因素。人们对自己及自身癫痫状况的认知与总体幸福感密切相关，癫痫发作频率、诊断确定性评分、确诊时间以及失神发作诊断似乎也具有一定意义。在一系列背景因素中，只有就业状况与幸福感存在显著关联。研究结果对癫痫患者的管理具有启示意义，并表明主观体验评分可有效纳入未来关于癫痫患者生活质量的研究中。
