Department of Psychology, The University of Sydney, Sydney, Australia.
Top Stroke Rehabil. 2013 Jul-Aug;20(4):356-68. doi: 10.1310/tsr2004-356.
Despite stroke being the most common form of cerebrovascular disease, there has been relatively little attention paid to the psychosocial experiences and needs of Australian caregivers of people who have had a stroke.
Twenty Australian informal caregivers and 10 stroke survivors participated in individual semi-structured qualitative interviews covering all aspects of caregiving, including stroke survivors' views on their caregiver's experiences.
The 5 interrelated topics most discussed were changes in relationships and support services, including being told to expect a poor outcome; caregiver attributes and coping strategies; stroke survivor limitations; external employment and financial stressors; and unexpected positive changes in relationships and priorities. Caring for a stroke survivor involves a complex interaction of these factors that appear to be moderated by the quality of the pre-existing stroke survivor-caregiver relationship and the poststroke coping strategies used.
Particular attention should be paid to how prognosis is conveyed and whether appropriate outpatient services are available. Clinicians should also consider discussing appropriate caregiver coping strategies and the quality of the relationship between the stroke survivor and caregiver.
尽管中风是最常见的脑血管疾病，但人们对澳大利亚中风患者照顾者的社会心理体验和需求关注甚少。
20 名澳大利亚非正式照顾者和 10 名中风幸存者参与了个人半结构化定性访谈，涵盖了照顾的各个方面，包括中风幸存者对照顾者经历的看法。
讨论最多的 5 个相互关联的主题是人际关系和支持服务的变化，包括被告知要期待不良结果；照顾者的特征和应对策略；中风幸存者的局限性；外部就业和经济压力源；以及人际关系和优先事项的意外积极变化。照顾中风幸存者涉及这些因素的复杂相互作用，这些因素似乎受到预先存在的中风幸存者-照顾者关系的质量和中风后使用的应对策略的调节。
应特别注意预后的传达方式以及是否有适当的门诊服务。临床医生还应考虑讨论适当的照顾者应对策略以及中风幸存者和照顾者之间关系的质量。
