Haimes Erica, Taylor Ken
Policy, Ethics and Life Sciences (PEALS) Research Centre, Newcastle University , Newcastle upon Tyne , UK.
Hum Fertil (Camb). 2013 Dec;16(4):246-51. doi: 10.3109/14647273.2013.803164. Epub 2013 Aug 2.
This article reports selected findings from a project investigating the question: 'Does volunteering for the 'Newcastle egg sharing for research scheme', in which IVF patients receive reduced fees when providing 50% of their eggs, entail any social and ethical costs?' The focus is on women's views of the role of the reduced fees in persuading them to volunteer. The study fills a gap in knowledge, as there have been no previous investigations of women's experiences of providing eggs for research under such circumstances. This was an interview-based study, designed to gain understanding of the volunteers' perspectives. The main findings are that the interviewees' primary goal is to have a baby; they volunteered to provide eggs for research in order to access cheaper treatment in a context where private IVF fees are high, there is insufficient state funding, and providing eggs for other couples' treatment was deemed unacceptable. Interviewees welcomed the scheme, but were not volunteering entirely under circumstances of their choosing; they would prefer not to provide eggs during their own IVF treatment and under certain circumstances change their minds about so doing. In conclusion, reduced fees, although an important factor, do not act as an undue inducement in persuading volunteers to act against their own interests.
本文报告了一个项目的部分研究结果,该项目调查的问题是:“参与‘纽卡斯尔卵子共享研究计划’(即体外受精患者提供50%的卵子时可享受费用减免)的志愿服务是否会带来任何社会和伦理成本?”重点是女性对于费用减免在说服她们参与志愿服务中所起作用的看法。该研究填补了知识空白,因为此前尚无针对女性在这种情况下为研究提供卵子经历的调查。这是一项基于访谈的研究,旨在了解志愿者的观点。主要研究结果是,受访者的首要目标是生育;她们自愿为研究提供卵子,以便在私立体外受精费用高昂、国家资金不足且为其他夫妇的治疗提供卵子被认为不可接受的情况下获得更便宜的治疗。受访者对该计划表示欢迎,但并非完全在自己选择的情况下参与志愿服务;她们宁愿不在自己接受体外受精治疗期间提供卵子,并且在某些情况下会改变这样做的想法。总之,费用减免虽然是一个重要因素,但在说服志愿者违背自身利益行事方面并没有起到不当的诱导作用。