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颅缝早闭:关爱婴儿及其家庭。

Craniosynostosis: caring for infants and their families.

作者信息

Burokas Laura

机构信息

Advocate Children’s Hospital, Oak Lawn Campus, Oak Lawn, Illinois 60453, USA.

出版信息

Crit Care Nurse. 2013 Aug;33(4):39-50; quiz 51. doi: 10.4037/ccn2013678.

DOI:10.4037/ccn2013678
PMID:23908168
Abstract

Craniosynostosis is a developmental anomaly with premature closure of the cranial sutures causing an abnormally shaped skull in an infant. Recommended surgical treatment involves cranial vault reconstruction to open the closed suture, increase intracranial volume, and allow the brain to grow normally. Parents work with a multidisciplinary team during the evaluation process and face various preoperative and postoperative stressors. Critical care nurses can improve the care of the infants and their families by being knowledgeable about the anatomy, assessment, and surgical and nursing management of infants with this anomaly and its impact on the patients' families. This article discusses the definitions, diagnosis, and treatment of craniosynostosis and support for parents of infants with this malformation.

摘要

颅缝早闭是一种发育异常,表现为颅骨缝过早闭合,导致婴儿颅骨形状异常。推荐的手术治疗包括颅骨重建,以打开闭合的颅缝,增加颅内容积,使大脑能够正常生长。在评估过程中,家长与多学科团队合作,并面临各种术前和术后应激源。重症护理护士若了解患有这种异常疾病的婴儿的解剖结构、评估方法、手术及护理管理,以及其对患者家庭的影响,就能改善对这些婴儿及其家庭的护理。本文讨论了颅缝早闭的定义、诊断和治疗,以及对患有这种畸形的婴儿家长的支持。

相似文献

1
Craniosynostosis: caring for infants and their families.颅缝早闭:关爱婴儿及其家庭。
Crit Care Nurse. 2013 Aug;33(4):39-50; quiz 51. doi: 10.4037/ccn2013678.
2
Postoperative nursing care of the endoscopic nonsyndromic craniosynostosis surgery patient.内镜下非综合征性颅缝早闭手术患者的术后护理
Plast Surg Nurs. 2008 Oct-Dec;28(4):183-5; quiz 186-7. doi: 10.1097/PSN.0b013e31818ea848.
3
Deciding on surgery: supporting parents of infants with craniosynostosis.决定是否进行手术:为患有颅缝早闭症婴儿的父母提供支持。
Axone. 2003 Mar;24(3):24-9.
4
Craniosynostosis - Recognition, clinical characteristics, and treatment.颅缝早闭——识别、临床特征与治疗。
Bosn J Basic Med Sci. 2018 May 20;18(2):110-116. doi: 10.17305/bjbms.2017.2083.
5
Craniosynostosis--corrective surgery for a cosmetic defect.颅缝早闭——针对美容缺陷的矫正手术。
Prof Nurse. 1992 Dec;8(3):176-8.
6
Cranial deformation in craniosynostosis. A new explanation.颅缝早闭中的颅骨变形。一种新解释。
Neurosurg Clin N Am. 1991 Jul;2(3):611-20.
7
Craniosynostosis.颅缝早闭
Am Fam Physician. 1997 Mar;55(4):1173-8.
8
Perioperative management of pediatric patients with craniosynostosis.小儿颅缝早闭患者的围手术期管理
Anesthesiol Clin. 2007 Sep;25(3):465-81, viii. doi: 10.1016/j.anclin.2007.05.008.
9
Increased bone formation and osteoblastic cell phenotype in premature cranial suture ossification (craniosynostosis).在早发性颅缝骨化(颅缝早闭)中骨形成增加和成骨细胞表型改变。
J Bone Miner Res. 1996 Mar;11(3):401-7. doi: 10.1002/jbmr.5650110314.
10
[Premature craniosynostosis. Diagnosis and treatment].[小儿颅缝早闭。诊断与治疗]
Ugeskr Laeger. 1994 Mar 7;156(10):1459-65.

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Craniosynostosis-4 with Heterozygous Mutation in the Gene: A Case Report.基因杂合突变所致的颅缝早闭-4:一例报告
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Cranial remolding orthosis for children with deformational skull deformities: A systematic review on the factors affecting success and duration of treatment.用于治疗小儿变形性颅骨畸形的颅骨重塑矫形器:关于影响治疗成功率和疗程因素的系统评价
World Neurosurg X. 2024 May 5;23:100386. doi: 10.1016/j.wnsx.2024.100386. eCollection 2024 Jul.
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Molecular Mechanisms Involved in Craniosynostosis.颅缝早闭相关的分子机制。
In Vivo. 2023 Jan-Feb;37(1):36-46. doi: 10.21873/invivo.13052.
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"When the surgery was over, I felt like the worst part had passed": experiences of parents of children with craniosynostosis.当手术结束时,我感觉最糟糕的部分已经过去了”:颅缝早闭患儿父母的体验。
J Spec Pediatr Nurs. 2022 Apr;27(2):e12370. doi: 10.1111/jspn.12370. Epub 2022 Mar 9.
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Subjective Assessment of Head and Facial Appearance in Children with Craniosynostoses after Surgical Treatment.手术治疗后颅缝早闭患儿头面部外观的主观评估
Healthcare (Basel). 2018 Oct 24;6(4):127. doi: 10.3390/healthcare6040127.
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Craniosynostosis - Recognition, clinical characteristics, and treatment.颅缝早闭——识别、临床特征与治疗。
Bosn J Basic Med Sci. 2018 May 20;18(2):110-116. doi: 10.17305/bjbms.2017.2083.
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A Qualitative Study to Explore the Views and Attitudes towards Prenatal Testing in Adults Who Have Muenke Syndrome and their Partners.一项定性研究,旨在探究患有Muenke综合征的成年人及其伴侣对产前检测的看法和态度。
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