Anderson Joanna, Wallace Louise
Coventry University.
Pract Midwife. 2013 Jun;16(6):28-31.
Although at any time in the UK there are about 20,000 women with multiple sclerosis (MS) who may be considering having children, very little is known about their experiences or about those who have had children after the onset of disease. Using semi structured interviews, we explored the childbearing experiences of nine women with MS in order to better understand their expectations, needs and concerns associated with pregnancy, childbirth and mothering. A major concern for women with MS was theirs and their babies' health and future wellbeing, especially how pregnancy can impact their long term MS prognosis and how the condition would affect their ability to look after the baby. In conclusion we suggest that midwives with special interests in MS could be a key source of information and ongoing support.
尽管在英国的任何时候，约有20000名患有多发性硬化症（MS）的女性可能正在考虑生育，但对于她们的经历以及发病后生育子女的女性的经历，我们知之甚少。通过半结构化访谈，我们探究了9名患有MS的女性的生育经历，以便更好地了解她们与怀孕、分娩及为人母相关的期望、需求和担忧。患有MS的女性主要担忧的是自己和宝宝的健康及未来幸福，尤其是怀孕会如何影响她们MS的长期预后，以及病情会如何影响她们照顾宝宝的能力。总之，我们建议对MS有特殊兴趣的助产士可能是信息及持续支持的关键来源。
