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自助与科学相遇:患者参与指南制定

[Self-help meets science: Patient participation in guideline development].

作者信息

Matzat Jürgen

机构信息

Kontaktstelle für Selbsthilfegruppen, Gießen.

出版信息

Z Evid Fortbild Qual Gesundhwes. 2013;107(4-5):314-9. doi: 10.1016/j.zefq.2013.05.006. Epub 2013 Jun 7.

Abstract

This article describes the development and current state of collective self-help in Germany, which is unique in Europe. It has received high recognition from both our society and the state, e. g., in the form of mandatory funding of self-help through the statutory health insurance funds. Since 2004, patient participation in the decision-making bodies of the self-governed German health care system has also been statutorily regulated, first of all in the so called "Joint Federal Committee". The relationship between doctors' organisations, such as the German Medical Association (Bundesärztekammer), the National Association of Statutory Health In-surance Physicians together with the Regional Associations of Statutory Health In-surance Physicians (Kassenärztliche Bundesvereinigung), and the scientific medical societies, has also shifted towards more cooperation, and specific bodies have been set up to this end. Finally, the Agency for Quality in Medicine (AQuMed, ÄZQ) and the Association of Scientific Medical Societies (AWMF) have contributed enormously to the involvement of patient representatives in guideline development groups. The author shares his personal experience in the closing section.

摘要

本文介绍了德国集体自助的发展历程与现状,这在欧洲独具特色。它获得了我们社会和国家的高度认可,例如,通过法定医疗保险基金对自助进行强制性资助。自2004年以来,患者参与德国自主医疗体系决策机构的行为也受到了法律规范,首先是在所谓的“联邦联合委员会”中。医生组织,如德国医学协会(Bundesärztekammer)、法定医疗保险医师全国协会以及法定医疗保险医师地区协会(Kassenärztliche Bundesvereinigung),与科学医学协会之间的关系也转向了更多合作,并为此设立了专门机构。最后,医学质量机构(AQuMed,ÄZQ)和科学医学协会联合会(AWMF)为患者代表参与指南制定小组做出了巨大贡献。作者在结尾部分分享了他的个人经历。

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