• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

自助与科学相遇:患者参与指南制定

[Self-help meets science: Patient participation in guideline development].

作者信息

Matzat Jürgen

机构信息

Kontaktstelle für Selbsthilfegruppen, Gießen.

出版信息

Z Evid Fortbild Qual Gesundhwes. 2013;107(4-5):314-9. doi: 10.1016/j.zefq.2013.05.006. Epub 2013 Jun 7.

DOI:10.1016/j.zefq.2013.05.006
PMID:23916271
Abstract

This article describes the development and current state of collective self-help in Germany, which is unique in Europe. It has received high recognition from both our society and the state, e. g., in the form of mandatory funding of self-help through the statutory health insurance funds. Since 2004, patient participation in the decision-making bodies of the self-governed German health care system has also been statutorily regulated, first of all in the so called "Joint Federal Committee". The relationship between doctors' organisations, such as the German Medical Association (Bundesärztekammer), the National Association of Statutory Health In-surance Physicians together with the Regional Associations of Statutory Health In-surance Physicians (Kassenärztliche Bundesvereinigung), and the scientific medical societies, has also shifted towards more cooperation, and specific bodies have been set up to this end. Finally, the Agency for Quality in Medicine (AQuMed, ÄZQ) and the Association of Scientific Medical Societies (AWMF) have contributed enormously to the involvement of patient representatives in guideline development groups. The author shares his personal experience in the closing section.

摘要

本文介绍了德国集体自助的发展历程与现状,这在欧洲独具特色。它获得了我们社会和国家的高度认可,例如,通过法定医疗保险基金对自助进行强制性资助。自2004年以来,患者参与德国自主医疗体系决策机构的行为也受到了法律规范,首先是在所谓的“联邦联合委员会”中。医生组织,如德国医学协会(Bundesärztekammer)、法定医疗保险医师全国协会以及法定医疗保险医师地区协会(Kassenärztliche Bundesvereinigung),与科学医学协会之间的关系也转向了更多合作,并为此设立了专门机构。最后,医学质量机构(AQuMed,ÄZQ)和科学医学协会联合会(AWMF)为患者代表参与指南制定小组做出了巨大贡献。作者在结尾部分分享了他的个人经历。

相似文献

1
[Self-help meets science: Patient participation in guideline development].自助与科学相遇:患者参与指南制定
Z Evid Fortbild Qual Gesundhwes. 2013;107(4-5):314-9. doi: 10.1016/j.zefq.2013.05.006. Epub 2013 Jun 7.
2
[Health services research and guidelines--from the Association of the Scientific Medical Societies' (AWMF) perspective].[从科学医学协会联合会(AWMF)的视角看卫生服务研究与指南]
Z Arztl Fortbild Qualitatssich. 2006;100(8):597-602.
3
[More power for patients: the patients' forum--a joint platform for the medical profession and patient self-help groups].为患者赋予更多权力:患者论坛——医学专业与患者自助团体的联合平台
Z Arztl Fortbild Qualitatssich. 2001 Aug;95(8):531-3.
4
[The German program for disease management guidelines. Background, methods, and development process].[德国疾病管理指南项目。背景、方法及制定过程]
Med Klin (Munich). 2006 Oct 15;101(10):840-5. doi: 10.1007/s00063-006-1114-9.
5
[The German Guideline Clearinghouse on Breast Cancer: the need for frequent updating of breast cancer guidelines requires effective guideline updating procedures].[德国乳腺癌指南信息中心:乳腺癌指南频繁更新的需求需要有效的指南更新程序]
Z Arztl Fortbild Qualitatssich. 2004 Aug;98(5):403-11.
6
[The National Programme for Disease Management Guidelines. Goals, contents, patient involvement].[国家疾病管理指南计划。目标、内容、患者参与]
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2007 Mar;50(3):368-76. doi: 10.1007/s00103-007-0163-4.
7
[Informed decisions: patient and consumer information at the German Agency for Quality in Medicine (ÄZQ)].[明智决策:德国医学质量机构(ÄZQ)的患者及消费者信息]
Z Evid Fortbild Qual Gesundhwes. 2010;104(7):578-84. doi: 10.1016/j.zefq.2010.09.001. Epub 2010 Oct 18.
8
[Patient involvement in clinical practice guidelines is poor after 12 years of German guideline standards: A review of guideline methodologies].[德国指南标准实施12年后患者在临床实践指南中的参与度较低:指南方法学综述]
Z Evid Fortbild Qual Gesundhwes. 2018 Sep;135-136:50-55. doi: 10.1016/j.zefq.2018.06.006. Epub 2018 Aug 8.
9
Procedures and methods of benefit assessments for medicines in Germany.德国药品效益评估的程序和方法。
Eur J Health Econ. 2008 Nov;9 Suppl 1:5-29. doi: 10.1007/s10198-008-0122-5.
10
Increasing patient centredness in outpatient care through closer collaboration with patient groups?: an exploratory study on the views of health care professionals working in quality management for office-based physicians in Germany.通过与患者群体更紧密的合作提高门诊护理的以患者为中心程度?:对德国基层医疗机构质量管理人员的观点进行的一项探索性研究。
Health Policy. 2012 Oct;107(2-3):249-57. doi: 10.1016/j.healthpol.2012.07.007. Epub 2012 Aug 9.

引用本文的文献

1
Patient involvement in developing a patient-targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.FEEDBACK.GP.患者参与在初级保健中进行抑郁筛查后的随机对照试验 GET.FEEDBACK.GP 中制定以患者为目标的反馈干预措施。
Health Expect. 2021 May;24 Suppl 1(Suppl 1):95-112. doi: 10.1111/hex.13039. Epub 2020 Apr 14.
2
Involving self-help groups in health-care institutions: the patients' contribution to and their view of 'self-help friendliness' as an approach to implement quality criteria of sustainable co-operation.让自助团体参与医疗机构事务:患者对“自助友好性”的贡献及其作为实施可持续合作质量标准的一种方式的看法。
Health Expect. 2017 Apr;20(2):274-287. doi: 10.1111/hex.12455. Epub 2016 Mar 28.
3
Bridging the gap between patient needs and quality indicators: a qualitative study with chronic heart failure patients.弥合患者需求与质量指标之间的差距:一项针对慢性心力衰竭患者的定性研究
Patient Prefer Adherence. 2015 Sep 30;9:1397-405. doi: 10.2147/PPA.S83850. eCollection 2015.
4
Making patient centered care a reality: a survey of patient educational programs in Italian Cancer Research and Care Institutes.让以患者为中心的护理成为现实:对意大利癌症研究与护理机构患者教育项目的一项调查。
BMC Health Serv Res. 2015 Jul 30;15:298. doi: 10.1186/s12913-015-0962-5.