Beatson Jean E
Department of Nursing, University of Vermont, Burlington, VT, USA.
Pediatr Nurs. 2013 May-Jun;39(3):142-5.
This study sought to understand how local Somali Bantu refugee mothers perceive education or health needs of their children with disabilities. Using a grounded theory qualitative design, the investigator interviewed five Somali Bantu mothers and one father in their homes. Four predominant categories emerged from the data: Native Healing, Unmet Needs, Ongoing Challenges, and Helpful Helping. Study findings demonstrate the need for nurses and other health care providers to understand the refugee experience in raising children with special needs in Vermont. Better communication between providers and families on critical topics, such as etiology and treatment of disabilities, negotiating systems of care, and managing health and safety issues at home, is needed. The small number of participants with limited interaction is the greatest limitation of this study.
本研究旨在了解索马里班图族当地难民母亲如何看待其残疾子女的教育或健康需求。采用扎根理论质性设计，研究者在受访对象家中对五位索马里班图族母亲和一位父亲进行了访谈。数据中出现了四个主要类别：本土疗法、未满足的需求、持续存在的挑战和有益的帮助。研究结果表明，护士和其他医疗服务提供者需要了解在佛蒙特州抚养特殊需求儿童的难民经历。在病因和残疾治疗、协商护理系统以及处理家中健康和安全问题等关键话题上，提供者与家庭之间需要更好地沟通。参与者数量少且互动有限是本研究的最大局限。
