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父母幸福感对唐氏综合征患者成人结局和痴呆状况的长期影响。

Long-term impact of parental well-being on adult outcomes and dementia status in individuals with Down syndrome.

机构信息

Cincinnati Children's Hospital Medical Center, Developmental and Behavioral Pediatrics, Cincinnati, OH 45229, USA.

出版信息

Am J Intellect Dev Disabil. 2013 Jul;118(4):294-309. doi: 10.1352/1944-7558-118.4.294.

Abstract

Parental characteristics were significant predictors of health, functional abilities, and behavior problems in adults with Down syndrome (n  =  75) over a 22-year time span, controlling for initial levels and earlier changes in these outcomes. Lower levels of behavior problems were predicted by improvements in maternal depressive symptoms. Higher levels of functional abilities were predicted by prior measures of and improvements in maternal depressive symptoms. Better health was predicted by prior measures of maternal depressive symptoms, paternal positive psychological well-being, relationship quality between fathers and their adult children, and improvements in maternal positive psychological well-being. Dementia status was also predicted by parental characteristics. The study suggests the importance of the family context for healthy aging in adults with Down syndrome.

摘要

在 22 年的时间跨度内,父母特征是唐氏综合征成年患者(n=75)健康、功能能力和行为问题的重要预测因素,这些因素控制了初始水平和这些结果的早期变化。行为问题水平较低与母亲抑郁症状的改善有关。功能能力水平较高与母亲抑郁症状的前期测量和改善有关。母亲抑郁症状、父亲积极的心理幸福感、父亲与成年子女关系质量以及母亲积极的心理幸福感的改善与更好的健康状况有关。痴呆状况也与父母特征有关。该研究表明,家庭环境对唐氏综合征成年患者的健康老龄化很重要。

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