Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Am J Intellect Dev Disabil. 2011 Jan;116(1):3-15. doi: 10.1352/1944-7558-116.1.3.
The authors examined factors that could explain the higher levels of psychosocial well being observed in past research in mothers of individuals with Down syndrome compared with mothers of individuals with other types of intellectual disabilities. The authors studied 155 mothers of adults with Down syndrome, contrasting factors that might validly account for the ?Down syndrome advantage? (behavioral phenotype) with those that have been portrayed in past research as artifactual (maternal age, social supports). The behavioral phenotype predicted less pessimism, more life satisfaction, and a better quality of the mother?child relationship. However, younger maternal age and fewer social supports, as well as the behavioral phenotype, predicted higher levels of caregiving burden. Implications for future research on families of individuals with Down syndrome are discussed.
作者研究了一些因素,这些因素可以解释为什么过去的研究表明唐氏综合征患者的母亲比其他类型智力障碍患者的母亲具有更高的心理社会幸福感。作者研究了 155 名唐氏综合征成年患者的母亲,将可能合理解释“唐氏综合征优势”(行为表现)的因素与过去研究中被描述为人为因素(母亲年龄、社会支持)的因素进行了对比。行为表现预测出较低的悲观情绪、更高的生活满意度和更好的母子关系质量。然而,较年轻的母亲年龄和较少的社会支持,以及行为表现,预测出更高水平的照顾负担。对唐氏综合征患者家庭的未来研究具有一定的启示意义。